[Anonymous]

#1054062

Do any of you who are hypo experience both good and bad days?

Some days, I feel like I’m “normal”, other days, I feel like it’s all I can do to just get out of bed.

Is this normal?

[Anonymous]

#1157760

Yes, yes, yes. There has been a lot of discussion on this in the past. I think it’s common to feel this way. There are many things I would have never “let go,” i.e., dishes. Now, I just don’t have the energy to do all of the things I used to. Then, on some days, I have plenty of energy. I have read that on the days when you have more energy, pace yourself and try to reserve some. Don’t overdo it because you will experience times when your energy level is basically nonexistant.

[Anonymous]

#1157761

I have a question, it may sound dumb, my daughter has this disease and she is 2 mo. and 1 wk. post RAI. I think she is still hyper, but improving, however it seems that somedays she can think more clearly than others. Is that how it gets better gradually, she’ll be more consistent. I’m thinking of her homework and for tests. One day it seems that it goes good and next day she doesn’t remember what she knew yesterday. mom By the way is there anyone from ND out there?

[Anonymous]

#1157762

Sorry dil, not from ND, but I can tell you that you’re right — your daughter’s progress will be measured gradually, not all of a sudden. Just take it easy, one day at a time, all that stuff.

It’s possible that the memory loss may continue beyond her levels being regulated — doctors are still investigating whether this is part of GD itself or related to imbalances, but a majority of us suffer from some deficiency in our memories. So working on “memory games” may be helpful — assigning initials to things that need to be remembered, or making mental pictures associated with certain details. This will come in handy for a lifetime!

Good luck to you both — give it time!

-Ski
NGDF Assistant Online Facilitator

[Anonymous]

#1157763

Does anyone know if we can reach a point where we don’t have many “bad days”? I’ve basically been doing well, although I’ve got a long way to go to reach “normal.” But after two to three weeks of feeling pretty optimistic, I sometimes just get blindsided by feeling so discouraged. Does this get better over time, or is it something I can expect as part of my life now. I was always a cheerful person, so this is a change and one I don’t like. Thanks for any thoughts on this.

[Anonymous]

#1157764

Oh, take heart! It is absolutely true that the good days begin to outnumber the bad days ~ no telling how long exactly that will take for you, but if you watch carefully you will find that the improvements continue (okay, very slowly). Try and focus on the positives ~ notice that today is better than yesterday, that this week there were only 2 bad days, things like that. The progression is constant, you WILL see a day when you might not even remember the last “bad” day. Give yourself some time right now, though, and give yourself a break if you do have a bad day. Your body is certainly still healing, and sometimes it just shouts for a rest. Listen.

-Ski
NGDF Assistant Online Facilitator

[Anonymous]

#1157765

I completely agree with Ski!!! This is my 10th year with Graves
and I *don’t* remember my last bad day! The good days will
eventually turn into good weeks and months and years! Just
hang in there! It’s a long looking road from where you’re
standing, but the length of the trip in the minds eye shortens
from this end of the road. There is light at the end of the
tunnel because I’ve been standing in it for years now. Although
GD is something that will always be lurking around in the back of
your mind (remembering to take that replacement hormone daily),
regular ol’ life will eventually crowd its way back in. Just
give yourself some time to heal mentally and physically. It’ll
happen…

All the best,
Sheila H.

[Author]

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