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  • Anonymous
      Post count: 93172

      HI, I am newly diagnosed also….RAI next Friday….and would very much appreciate any answers or thoughts you may contribute, Thank you!
      Just want to know how each of felt during RAI and the 3 months post RAI?
      I have almost all of the classic symptoms of Graves.
      Had TSH with returns of TSH: .03 and T4 Free at 3.5 …My Creatine, BUN, WBC, and HCT were low.
      My scan results said that I had enlarged thyroid glands with homogeneous uptake in the right and left lobes. Multinodular goiter.
      I had a Stress Echo done and have a resting heartrate of 105….but no damage could be detected…Thank God

      I had Breast Cancer which required 15 Chemo and 28 radition treatments in 2003.
      I went to my doc because I was feeling like maybe I had some heart damage from my Cancer therapy.
      I know what I went through then…so I am thinking this will be a piece of cake…(maybe with a nasty tasting frosting, though???)
      Weak, sweaty (thought it was all hot flashes, but now I think otherwise) and I was getting so out of breath from doing absolutely nothing! I used to exercise on a regular basis, but now when I try to get some…I just don’t get that same good feeling ..I just get tired!

      Will this all go away once I get treated? And how fast will I feel a change? Doc says that I will go into Hypo….how did you feel when you went through that and how long did it last? Was it difficult during those 3 months or however long it took before you got the thyroid hormone? And was there ever a day or week that you were not able to go into work? And are things pretty even once you receive the hormone…or do you have up and downs….and is “even” a good or bad feeling…I guess I mean do you feel better than before …or just different, but okay and functional?
      Thanks again for any and all info you can provide.
      God Bless each and everyone of you…I know how you all started…and it is a bit of a rough road right now….hope it smooths out!

      Anonymous
        Post count: 93172

        Hi all!

        Well, my endo was good about letting me try for remission, but after more than a year on tapazole, we have scheduled the RAI for next week.

        I feel good about giving my body a chance to heal itself, but I am ready for this step now.
        I’ve been reading a board that talks about never doing RAI, but the people I have met who have done it report few problems, so I’m going to trust the people I know, the doc and myself with this decision.

        I was surprised to be told that I only have to stay away from people for a few days. I definitely want to do this now so I can be with my daughter when she has twins in February.

        Best Wishes and Christmas Blessings to All of you!
        Tami

        Anonymous
          Post count: 93172

          I wish you good luck, Tami. My own personal experience with RAI has been good.

          Since it sounds like you have a good relationship with your doctor, you may already know this, but in case you don’t: About one week after RAI — give or take — we can feel intensely hyperthyroid. This phenomena is normal, but if you have not been alerted to it, it can be worrisome. It is due to something we tend to call “dumping” here on this board. Thyroid cells not only make thyroid hormone, but they also store some for future use. As thyroid cells are destroyed by the RAI, they release these stored supplies into the blood, making us more hyperthyroid than “normal.” Since these cells are not making new hormone, this period of excessive hormone is typically rather short-lived. Sometimes — depending upon how hyper our doctors expect us to become — they prescribe medications to alleviate symptoms. So, if you should become quite uncomfortable, and your doctor has not prescribed anything, you might want to call.

          Congradulations on the upcoming twin grandbabies. That should keep everyone on their toes!

          Bobbi — NGDF Online Facilitator

          Anonymous
            Post count: 93172

            Thank you for the reminder. My endo told me to start on a low dose of symptom medicine now, and told me to double it when needed. She did say the worst symptoms occur a week or two after the procedure…but didn’t get specific! Thanks for the info..it really helps to know this.

            Tami

            Anonymous
              Post count: 93172

              Tammi, I too was told to do RAI but I opted not to since PTU did a great job for me and can go off it and stay in long remissions. Glad you are comfortable with this and good luck dear.

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