[Anonymous December 2, 1996 at 8:42 am Post count: 93172]

#1167385

Kendra, You can do what I did and hope to land a good one. I couldn’t get a referral
and there are no Endos for miles around here. I went to the American Association of
Clinical Endocrinology Web Site, http://www.aace.com. Look for a list of Endos in
your area, some have e-mail addresses. I e-mailed the one nearest me with my whole
nine yards of woe and said I couldn’t wait weeks to be seen. Low and behold, he was
an angel of mercy and saw me within two days. I found out that it normally takes 2 months to see him
and that he is a former president of said organization. He also helped co-author their
guidelines for diagnosis and treatment of hyperthyroidism! God really blessed that endeavor.
GO FOR IT! You have nothing to lose and everything to gain. If you get someone kind enough
to reply, then you get an idea of what sort of person it is…. Take care. Glynis

[Anonymous December 2, 1996 at 8:51 am Post count: 93172]

#1167386

Hi All,

I followed Glynes’ advice and looked up the AACE web site. We have added it to
our links page on the NGDF home page. I found the site to be first rate and only
wish more doctors had added their e-mail addresses. This site is an axcellent source
for locating doctors in your area. I looked for all the endos in my area and found
that only those who were board certified at the diplomate level were in the listing.
Gave me a warm fuzzy that they look at cridentials. Keep looking and there are good
endos out there. I have said it before there are diamonds among the stones.

Regards,
Jake

[Anonymous December 2, 1996 at 8:51 am Post count: 93172]

#1167387

Hi All,

I followed Glynes’ advice and looked up the AACE web site. We have added it to
our links page on the NGDF home page. I found the site to be first rate and only
wish more doctors had added their e-mail addresses. This site is an axcellent source
for locating doctors in your area. I looked for all the endos in my area and found
that only those who were board certified at the diplomate level were in the listing.
Gave me a warm fuzzy that they look at cridentials. Keep looking and there are good
endos out there. I have said it before there are diamonds among the stones.

Regards,
Jake

[Anonymous December 2, 1996 at 1:29 pm Post count: 93172]

#1057965

Can anybody help? I have had terrible luck with endos .Either they are not accesible and do not return calls or they treat me and my GD as if it were just a mild irritation. I wish endos saw this bulletin board!! If any one has suggestions about endo searching or how I could be a better patient please log on! Also I live in the Boston area (south of B.) so any referrals re: endos would be greatly appreciated. Thanx everybody!! >>>Kendra..

[Anonymous December 2, 1996 at 4:36 pm Post count: 93172]

#1167388

Glynis I took your advice found aace but are any of them GD specialists? Or maybe they don,’t have to be

[Anonymous November 17, 2004 at 10:34 pm Post count: 93172]

#1167389

Hi,

I would like to know what to expect from a good Endo. I am currently seeing one that I am not impressed with. She does look over my labs but doesn’t offer any support other than dosage change. Is this normal? She also gets angry when I take advice from my family doctor – seems to be on a power trip. I just don’t know – are there some out there that offer support, are there to answer questions and provide information? When I told her my hair was falling out – she barely responded.

She’s not concerned about how Grave’s is affecting my life. She also says it’s not necessary to have GED followed by a specialist. She says that I don’t need to be followed until it progresses quite a bit that it’s affecting my sight. That doesn’t sound right to me, but please tell me.

I feel that I can get lab interpretation from my family doctor. Please provide feedback. Right now I am traveling over 2 hours to see this Endo and I’m trying to decide if it is worth it.

Thanks

[Anonymous November 18, 2004 at 6:48 am Post count: 93172]

#1167390

You need to follow your gut feeling with this. If you are not comfortable with this endo then fire her and find another. Most specialist though are not always happy if a PC tries to change one of their orders. I have both an endo and a PC and have no trouble with the two of them. I get limited support from my endo. If you tell her something and she doesn’t respond, say it again and ask her what should be done. Sometimes we need to be aggressive.

Diane B On-Line Facilitator

[Anonymous November 18, 2004 at 9:20 am Post count: 93172]

#1167391

My primary Doctor that I work with is an Internist. While all Endocrine specialist have taken Internal medicine, they have gone on to specialize in the endrocrine system, but Internist also have a broad interest in the chemistry of the body and can help in other areas of treatment. Perhaps there are more internist in your area that you could pick from. Good luck! As in any profession, it’s not the lable but the person that makes the difference.

[Anonymous November 18, 2004 at 8:39 pm Post count: 93172]

#1167392

Yes, you’re right. I should probably fire her. I know that I do need to be more assertive, I guess I just expected her to care about what I was going thru and was hoping to hear that most endo’s are not like this. The reason I took my family docs advice over hers is because she had my levels going up and down like a roller coaster and it was having terrible effects on my relationships and she didn’t take any responsibility for it or even seem concerned. Anyhow, thanks for your advice.

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