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  • Anonymous
      Post count: 93172

      I was diagnosed with Fibromyalgia almost four years ago after being sick for a long time. I had my thyroid checked too many times to mention and the tests always came back as my thyroid functions as being within the range of normal. The fatigue, double vision, sensitivity to light, hair loss, and pain have been helped a great deal with my taking a new supplement (new to me since i have taken almost everything known to man kind in the non-drug line). I take a top quality line of mega vitamin, multi mineral, anti oxidant formula, calcium/magnesium formula, plus grape seed extract twice a day. I will be happy to share specific information with anyone who is intersted, and I will help in any way that I can. You never know, some of what has worked for me may work for you, and wouldn’t that be wonderful. All the best. SUSAN DUGGAN

      Anonymous
        Post count: 93172

        I am interested in knowing whether there is an aknowledged link between Fibromyalgia and Graves Disease. I have been diagnosed with Graves Disease while my mother has been from doctor to doctor for years with Chronic pain and NO diagnosis. After all my research on Graves Disease and autoimmune disorders I have passed on the info to my mother, telling her to share the info with her doctors. I have now noticed additional symptoms of joint pain even when I am not rigorously exercising in dance classes. I am now starting to believe the joint pain might be part of this disease. What are the symptoms of Fibromyalgia you have experienced and do you see a correlation between it and Graves Disease? I have also heard that magnesium works wonder for these diseases. I am currently looking for natural and/or alternative remedies for this disease. What other vitamins have you had success with. Also have you had success with alternative therapies? I don’t have much hope left in my “traditional” doctors I have seen, my thyroid panels are still normal but I have swollen eyes, double vision, anxiety, etc. All’s my doctors says is “wait and see”. I have decided to try other remedies, since I believe in preventative medicine. Besides the traditional treatments for Graves Disease sound well, GRAVE. Thanks for listening.
        Michele

        Anonymous
          Post count: 93172

          In all the reading that have done I have not seen Graves disease and FM discussed in the same articles. What I have seen is a correlation between the two in that they both result from a comprimised immune system, and when I did some reading on Graves disease, I realized there was some cross-over in the symptoms. The main symptoms of FM are muscular pain, fatigue, insomnia, joint pains, headaches, restless legs, numbness and tingling, impaired memory, leg cramps, impaired concentration, nervousness, and depression. I have a lot more to add to the list from my own personal ‘file’, but space is short. I have the best success to date with a strict diet, regular exercise, regular visits to my massage therapist and chiropractor, and a high quality, high potency nutritional supplement. This is the best I have felt in years and I have tried a ton of things. I can’t consider myself cured, but I can function at normal or near normal levels most days. Hope this helps. You can contact me directly if you wish.
          Susan

          Anonymous
            Post count: 93172

            I would like to know what type and brand of supplements you are taking. Thanks for any info you can offer.

            Anonymous
              Post count: 93172

              I have been taken Cod Liver Oil tablets and rubbing my joints with
              Capsaicin Cream..Even in this cold weather. I think I am better.
              I have gained weight which I know does not help my joints..But I still
              think the cod-liver oil helps and it is cheap..

              Anonymous
                Post count: 93172

                First, I’d like to express my gratitude to all who have contributed to this forum. Even five years after diagnosis and treatment for Graves’, it is important to know that I am not alone in experiencing symptoms and practical problems in management which many of you have been dealing with. There were more “pat”, stereotypical answers given then, more misinformation, and less frank sharing.

                On the topic of fibromyalgia: Four years after RAI, I am finally at a pretty good level of comfort and free of muscle cramping. I think it has to do with a new endocrinologist who has upped my synthroid dosage to .2 and the fact that I take a prescribed dosage of at least 800 mg. of Ibuprofen a day. Related to this and an earlier question about osteoporosis — 500 mg. of calcium with Vitamin D and estrogen replacement help me with bone problems after RAI. (I actually got hairline fractures in my ankles two weeks after RAI, when all went haywire.) Long term use of synthroid does cause bone loss.

                I am so happy to be able to walk and do the chores around home and farm today, at last without pain! There is hope.

                Anonymous
                  Post count: 93172

                  I was wondering if anyone out there has some of the same symptoms I am suffering with. I am not sure they are all linked to the graves disease. I have episodes nearly everyday. Outbursts of crying for no reason. I have a hard time stopping it, and can have several episodes a day. Also have anxiety and a lot of it, along with depression. I have been on Paxil for three weeks.
                  I would really appreciate any input.
                  Thank you

                  Anonymous
                    Post count: 93172

                    Just my two cents…my experience has been that I am on the verge of crying at any given point. I did go on celexa for a couple of months and it helped but it made me really tired so I stopped. I am pretty sure that this is a symptom of graves disease along with anxiety.

                    Anonymous
                      Post count: 93172

                      Thank you so much for your reply. I wish there was something to help these outbursts, I feel like an idiot. I am glad to know someone else has the same problem, although I wouldn’t wish it on anybody. The Paxil isn’t working as of yet, but I have hopes. I was on Prozac for years, but it quit working. Celexa gave me bad dreams.

                      Anonymous
                        Post count: 93172

                        Crying is DEFINITELY something we all battle with — I’m at normal levels, and I can barely be near anything that might be touching or sweet without breaking down. When my levels were imbalanced, I could be set off by just a look or a tone of voice. It is very disconcerting, I know, and it makes us feel so out of control. You’re pursuing the right treatment, and I truly hope you find something that works for you. Hopefully, once your levels are normal and have remained normal long enough to allow your body to heal, you can go off any medications you’ve been taking for these episodes. If not, at least there’s something that helps you.

                        Depression is very common with GD patients, and actually, with all patients who are dealing with an autoimmune disease. I think it has something to do with the fact that this may be the first time we’ve faced something we cannot eradicate, and also I think there’s a grieving process for the “well” person we used to be. Again, if there are meds that can help you through, take advantage. There’s nothing to be gained by feeling awful when there’s an alternative that will make you feel NOT awful.

                        I hope that helps a little!

                        ~Ski
                        NGDF Assistant Online Facilitator

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