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  • Anonymous
      Post count: 93172

      Has anyone experienced eye problems after 2 years of being diagnosed? It is very slight at this stage and I’m not sure what the problem is but could I be experiencing the beginings of a proptosis after 2 years of being diagnosed? I have pain behind the eyes but it seems associated to migraine. Is it worth seeing an optomologist or should I wait and see if the vision and pain persists? What can they do, really? I’m not keen on the steroid option!
      Any answers, please e-mail me.
      Thanking you in advance.
      Carol Anne in NZ.

      Anonymous
        Post count: 93172

        Since the eye disease is caused by the antibodies, and not the elevated thyroid levels, it can occur at any time — before, during, or after treatment for hyperthyroidism. Please, get yourself to a good ophthamologist, and have it checked out. It may not have anything at all to do with Graves, but if it does you need to be monitored.

        Bobbi

        Anonymous
          Post count: 93172

          Bobbi said exactly what I was going to say. Don’t take any chances and see an Opthalmologist well versed in Graves Eye Disease. It was a year after RAI, I was on no replacement medicine, feeling fine and slight symptoms of not focusing when reading (when going from the bottom of one page to the top of the next) srarted. Over time, even with an excellent Opthalmologist who specialises in Graves Eye Disease, I have gone the route of pulse steroid treatments, orbital irradiation, orbital decompression and at the moment am still suffering from very painful eyes and extreme bouts of double vision.

          As a matter of fact I can barely see what I am typing unless I close one eye. Steroids in small doses while receiving treatments did not bother me. PLEASE get this checked out. Good luck and take care. SAS

          Anonymous
            Post count: 93172

            I had RAI 22 years ago and felt great during this time.
            Last year the eye problems hit me. I am living proof that
            it can happen at any time.

            Anonymous
              Post count: 93172

              I have eye problems even though I have a normal TSH level. I was told that eye problems could happen a
              at any time even up to 18 months prior to TSH problems.

              Anonymous
                Post count: 93172

                I have eye problems even though I have a normal TSH level. I was told that eye problems could happen a
                at any time even up to 18 months prior to TSH problems.

                Anonymous
                  Post count: 93172

                  Hi…Carol Anne made a mistake in her address so if you want to respond to her by e-mail as she requested just click on the address I have left here. She put in a dot where an @ was needed. Jeannette

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