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  • Anonymous
    Post count: 93172

    “Euthyroid” simply means normal thyroid. I also am staring to wonder if the majority of Graves’ patients have ongoing, mutating symptoms that persist years after the RAI or surgery. I used to think not, and because I had RAI in July of 95 it’s only been 1½ years.I figured I was still adjusting. I also figured I’d be *all better* by summer of ’97. Maybe not!I read on this bb of so many sufferers who are experiencing yucky stuff literally decades from their treatments. Yikes!Hope your muscle pain goes away!! :0{Sympathetically, Ariel

    Anonymous
    Post count: 93172

    I depressed. Does euthyroid really exist? I was wondering where
    the medical profession gets its statistics? When I was diagnosed with Graves.
    My doctor said that I would drink a tasteless drink, feel better, feel worse, go
    hypothyroid, then take a little pill for the rest of my life. She said that after
    some adjustment period, 1-3 years, I would feel like new again. It is called “euthyroid!”
    Truth is, I have never met anyone with GD that feels euthyroid. Is that person out there?
    I wonder if after 1-3 years we just stop telling our doctors how we really feel? I know
    in a way I have….Sorry to vent, I’m having alot of muscle pain this week. It always
    makes me alittle crazy….thanks…..Carolyn

    Anonymous
    Post count: 93172

    I was so recently diagnosed that I’m still researching, trying to figure out exactly where I am. I don’t have either hypo or hyperthyroid. The diagnosis is Euthyroid disease. My TSH is 0.1. Double vision is my main problems. My question is, what exactly does Euthyroid mean? What other symptoms are generally prevelant? I tire more easily than before for one thing. I can’t seem to find things spelled out anywhere for this particular diagnosis. This board has been a tremendous help in many ways.

    Anonymous
    Post count: 93172

    Sandy – I have the same thing – my last TSH was 0.13 but I am going to
    have another blood test tomorrow. I don’t really have any symptoms of
    hyperactive thyroid but I have not seen an Endo yet. However I have
    severe double vision and was diagnosed in March. The double vision just
    keeps getting worse. I guess euthyroid means the thyroid isn’t reacting.
    Maybe someone else has a better description.

    Anonymous
    Post count: 93172

    It is my understanding that “euthyroid” means that your thyroid levels are normal — neither high nor low. I’m guessing that you’ve both been tested for antibodies on the basis of your eye symptoms (?) It would be interesting to know what, if any, therapy your doctors are suggesting.

    Anonymous
    Post count: 93172

    Hi Sandy

    I have what is known as “Euthyroid Graves’ Ophthalmopathy” which sounds like what is going on with you.

    What this means is that you have the eye disease portion of Graves’ without the thyroid problems. In this case the eye muscles are what apparently is being attacked by the antibodies and not the thyroid gland itself. In many cases though, the thyroid portion of the disease may come on at a later date.

    Bruce

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