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  • Anonymous
      Post count: 93172

      I know exactly what you mean. I could never understand when someone said, “oh, I just can’t do it.” I do now. Seems sometimes I consistantly crash around 1:00 in the afternoon and I’m completely worthless after that. Go figure! Other days, I’m fine. I have felt pretty good lately and haven’t been extremely tired. But I take naps more often that I ever have. I recently read that someone in this condition should pace themselves. In other words, during those times when they feel pretty good, they should not over do it. Save some of that energy. Made sense to me. I realize the “drugged” feeling goes with the territory and is real. I was happy to see that I wasn’t the only one who became “dull” in my thinking and sluggish in body. I hope you and your family understands it is something which is out of your control, it is a very real condition. That it is something everyone just has to acknowledge and accept. I used to hold myself up as some superhuman because “I never got tired, aren’t I neat,” and have little compassion for someone who took naps all the time. Boy, I guess this showed me a thing or two.

      Anonymous
        Post count: 93172

        Why is it that some days you feel like you can climb Mt. Washington and
        Mt. Ranier and other days you feel like getting out of bed is a
        chore? Before graves your days were consistent post RAI four years later
        and you can never predict what kind of day you are going to
        have till you get up in the morning. TSH levels were normal for
        last year till recent HYPO diagnosis. Graves is a mystery!
        I alwats considered myself an upbeat positive person but prdicting
        from day to day is hard to tell. Anyone else feel the same and why is this??
        Dee

        Anonymous
          Post count: 93172

          im having a bad day to cancelled
          my dentist appointment because i
          knew the way i was felt today well, i couldn’t
          sit in the chair for long so i moved the appoinment.
          Hang in there warrior,

          love,steve

          Anonymous
            Post count: 93172

            Ditto to both of you. I feel exactly the same way. I wish there was something I can do to avoid the afternoon crash because it makes work really tough. I usually don’t get my second wind until after 8 0r 9 pm and have done alot of sleeping the clock around since I’ve had this disease.
            Joe

            Anonymous
              Post count: 93172

              I also experience this up and down swing. Does anyone know why it happens
              and is there any way to stabalize it?
              Thanks – Barb

              Anonymous
                Post count: 93172

                In the article I had read, it called the thyroid your “Get Up and Go.” That in itself explained it to me.

                Anonymous
                  Post count: 93172

                  I am new to this site and have many questions. I was diagnosed with GD about 2 and half years ago and had RAI done about 3 months after that, I went from feeling really bad physically and emointanlly, then I started feeling better about 3 month after the RAI and thought I could deal with the GD, that only lasted for about 2 months and rapidly got worse than before, I was pulling muscle in my neck just by turning my head, got chostocondritis, and felt like I had the flu for over a month, that is when my doctors finally decided to put me on cnythroid, which made me feel better very quickly but still not normal, my biggest problem now is my energy levels. I still have not got the energy back that is needed to do normal everyday things, like clean house, play with my kids, and just live a normal life. I tried some herbal energy pills recently which happen to have the opposite affect on me and made me feel horrible. I am desperate to know what i can do to help my energy levels. Thank you for your time.

                  Serenity

                  Anonymous
                    Post count: 93172

                    Hi Serenity,

                    Depending on how long you’ve been taking Synthroid, you may still need to adjust your dose a little to find YOUR normal point. First, it takes our body up to six weeks just to adjust to a new dose of thyroid hormone replacement (so don’t give up until you’ve reached that point). Second, there is no absolute formula to tell the doctor what dose you ought to be taking. They have some general ideas, but people are different and this particular substance cannot be “dialed up” simply by plugging in a person’s height, weight & age. It takes some tinkering to get to the RIGHT point for most of us.

                    I think you found out conclusively that the “energy pills” people tout are not for us. We need to be VERY careful about what “herbal” treatments we take advantage of, because they can actually counteract our medications in some cases. If you are going to experiment with something herbal, just make sure your doctor knows you are taking it so they can let you know about any known interactions and monitor you during its use.

                    The thing to remember is that there is no “standard normal” point for anyone. The normal range for thyroid hormone levels is really large, and some people feel better at one extreme or the other. The important thing to do is to QUANTIFY your feelings for the doctor. Keep a daily log of your symptoms and show it to your doctor at your next checkup. It can help immeasurably for the doctor to understand exactly what you’re going through — and include comments on activities you were not able to participate in because of your low energy level. Saying “I’ve been really tired” is much less convincing than producing a chart you’ve kept daily, showing sleep patterns, energy levels, etc. Your doctor should be willing to adjust your medication — within the normal range, of course — in order to help you feel better. If not, it’s time for a new doctor.

                    There is a log sheet available as a “bulletin” from the NGDF, FYI.

                    I wish you luck!

                    ~Ski
                    NGDF Assistant Online Facilitator

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