[Anonymous November 8, 1996 at 10:26 am Post count: 93172]

#1058268

Appreciate the info. Trying to learn as much as possible on Graves.

[Anonymous December 3, 1996 at 12:03 pm Post count: 93172]

#1168114

Living in a small town noone seems to understand my sicknness. Ten plus years have passed. Have been very sick like each and everyone of you. I have had the R.A.I. treatment three years ago. I have been on from .025 to.125mg of synthyriod drug. Nothing helped. My doctor said I needed antidepressents or anxiety pills. I would not do this. After getting deathly sick Iwas placed on Cytomel. I feel better but still have my strggles. A caring husband was my only help. Since going on the internet not so long a go and finding this page of support I no longer feel like Iam on a lonely struggle.THANKS! I realize my panicks are real and so are my sleepless nights! 1

[Anonymous December 15, 1996 at 1:17 am Post count: 93172]

#1168115

Hello everyone! At this moment, I feel I probably don’t even have a right to be writing on this board, but, oh well.
Well, I dont know if I was right or wrong, and I guess that my not knowing very much was the reason, but I stopped taking my PTU.
I wasn’t sure what was going to happen with the endo in that she couldn’t see me until mid-january. I didn’t feel that the doctors at the student health were
treating me wisely and I wasn’t sure how to handle that. I know I wasn’t informed by my doctor about alot of things I feel that I should have been.
I’ve been getting rashes on my upper cheeks and my throat is sore today. My back has been really achy lately and I’ve had alot of
numbness in my toes. I’m hoping in January I can get these things taken care of.
Any way, I wanted to tell all of you “thank you” for all of the input and suggestions you’ve made
I really appreciate being able to “voice” my concerns and questions. I just got a new job at First Security Bank
so I’m working the days there, which is really fun and working every other night waitressing at a 50’s-60’s restaurant.
Trying to get my hubby put through college. Anyway, I’ll write and let you know how I’m doing wenever I can get the chance to come down to the student computer
lab. And thanks again for all your help! Rhonda

[Anonymous December 15, 1996 at 1:17 am Post count: 93172]

#1168116

Hello everyone! At this moment, I feel I probably don’t even have a right to be writing on this board, but, oh well.
Well, I dont know if I was right or wrong, and I guess that my not knowing very much was the reason, but I stopped taking my PTU.
I wasn’t sure what was going to happen with the endo in that she couldn’t see me until mid-january. I didn’t feel that the doctors at the student health were
treating me wisely and I wasn’t sure how to handle that. I know I wasn’t informed by my doctor about alot of things I feel that I should have been.
I’ve been getting rashes on my upper cheeks and my throat is sore today. My back has been really achy lately and I’ve had alot of
numbness in my toes. I’m hoping in January I can get these things taken care of.
Any way, I wanted to tell all of you “thank you” for all of the input and suggestions you’ve made
I really appreciate being able to “voice” my concerns and questions. I just got a new job at First Security Bank
so I’m working the days there, which is really fun and working every other night waitressing at a 50’s-60’s restaurant.
Trying to get my hubby put through college. Anyway, I’ll write and let you know how I’m doing wenever I can get the chance to come down to the student computer
lab. And thanks again for all your help! Rhonda

[Anonymous December 15, 1996 at 1:18 am Post count: 93172]

#1168117

Hello everyone! At this moment, I feel I probably don’t even have a right to be writing on this board, but, oh well.
Well, I dont know if I was right or wrong, and I guess that my not knowing very much was the reason, but I stopped taking my PTU.
I wasn’t sure what was going to happen with the endo in that she couldn’t see me until mid-january. I didn’t feel that the doctors at the student health were
treating me wisely and I wasn’t sure how to handle that. I know I wasn’t informed by my doctor about alot of things I feel that I should have been.
I’ve been getting rashes on my upper cheeks and my throat is sore today. My back has been really achy lately and I’ve had alot of
numbness in my toes. I’m hoping in January I can get these things taken care of.
Any way, I wanted to tell all of you “thank you” for all of the input and suggestions you’ve made
I really appreciate being able to “voice” my concerns and questions. I just got a new job at First Security Bank
so I’m working the days there, which is really fun and working every other night waitressing at a 50’s-60’s restaurant.
Trying to get my hubby put through college. Anyway, I’ll write and let you know how I’m doing wenever I can get the chance to come down to the student computer
lab. And thanks again for all your help! Rhonda

[Anonymous November 7, 1997 at 3:11 am Post count: 93172]

#1168118

Hi Martha –

we had our own experience with stem cell transplant a year ago February
when my mother had it for ovarian cancer. It was extremely frightening
for me because she is so allergic to so many drugs (her first operation
for the cancer was done under an epidural and tylenol 3 for example) and
I thought that chemo three day cocktail would do it. I was also 4500
miles away in the Aleutian Islands of all places (that’s the LAST time
job keeps me away from something like that. Didn’t take me long to change
my priorities after that one.)

Anyway – she had all the same reactions that you have described and they
did go away finally. She has consistently gone beyond all her prognoses
and outlived her doctor’s morbid predictions for life expectancy for
four years running now. The bone marrow (stem cell in her case) was very
hard on her certainly, and she was 63, while the cutoff for the trial
was supposed to be 60. She’s rebounded incredibly and it amazes me to see
what her body can withstand and can fight. She is back on chemo, but still
outlived another dire prediction that October would be her end (she walked
into her doctor’s office in September and said, “You gave me three months
to live in August, it’s two months down and I look better than any of you.”
And she’s right! So here she is 3000 miles from home, visiting, and walking
all over (and staying out of crowds and masks on the airplane).

I wish you the best, and know that from our experience the person you
love will be herself again. Best to a safe and healthy recovery. I’ll be
thinking of you and your daughter.

Thanks to Bobbi and Jeanette for your responses to my postings. Thanks again
for the BB, I’m feeling better so I’m starting to pick out the positive
postings. I couldn’t absorb them when I felt so lousy. You’re right about
the PTU not kicking in until later and the theory that I felt better
because I was relieved. I felt better because I took Friday and Monday off
and went on a great road trip with my mother!!! Regards, Susan

[Anonymous May 30, 1999 at 8:27 pm Post count: 93172]

#1168119

Diane, thank you for your reply. I did not realize that if you go hypo that you could still experience the palpitations. I’m crazy worried about those things. They put me in such a state of panic. I’ve never worried so much about my heart. I’m young, don’t smoke, don’t have any history of heart disease in my family and my cholesterol was high in 200’s but now under 200. I’m only 37 and feel like I’m 100. I have a young family and just want to get back to being normal. Do you think that will ever happen?

Thanks, Raquel

[Anonymous May 8, 2000 at 1:48 am Post count: 93172]

#1168120

Thank you Diane. Every piece of information sheds new light….and more indecision.

Kazza

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