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  • Anonymous
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    Post count: 93172

    Hi everybody,

    I was wondering if anybody would like to share their experiences of taking carbimazole e.g. side effects etc….
    Also if anyone has any information of the effect of radioactive iodine on the ovaries.
    I would really appreciate anything anyone has to say about these.
    Thanks,
    Mary

    Anonymous
    Participant
    Post count: 93172

    I have been taking Carbimazole for the last 3 years. I find that the main side effect is that it made me feel tired and mentally ‘fuzzy’. I had to stop taking it on two occasions and each time, after two or three days, I suddenly felt ‘alive’, colours seemed brighter and I felt really well. Then the hyper symptoms kicked in again and when I restarted the Carbimazole it felt like a mental fog enveloped me.

    Anonymous
    Participant
    Post count: 93172

    I am not sure which of our US antithyroid drugs equates to carbimazole. However both of the types here come with potential side effects of lowering white blood cell count (and thereby rendering us more likely to get a bad infection) and liver problems. The liver problem warnings are somewhat standard for many drugs, however, that are metabolized in the liver. The problems are rare, but we are warned to watch for signs of unusually strong infections, etc. Some people do turn out to be allergic to the drugs as well, so there are warnings about rashes and hives.

    I, too, had the problem of muzzy thinking when I was taking the antithyroid drug. It apparently doesn’t happen to everybody, but I was a mental midget while on them, which is one reason I refused to take them for very long.

    As far as the affect of RAI on the ovaries: What I have read is that the amount of radiation our ovaries receive is roughly similar to the amount they would get if we had a barium GI set of xrays. In other words, not much. Here in the US we are advised not to try to get pregnant for some months after RAI in order that the most mature eggs ( apparently the ones most susceptible to the radiation) would have a chance to be eliminated from the body without being fertilized. This is in the nature of a precaution. I also think we are advised to wait a bit because it takes a while to get our hormone levels right after RAI, and pregnancy would throw in another complexity that could make stabilization more difficult.

    Hope this helps,
    Bobbi

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