Brenda, my grandson Matthew lives with me – he has had Graves for over 2 years now. He just turned 7 in October. He wasn’t diagnosed until last Feb. I found an excellent specialist who I trust with this child’s life. It is extremely difficult on a small child. He grew a foot and a half between his 5th birthday and his 6th. He has been on several different medications – some worked better than others. He has adjusted to having this disease and hopes someday he won’t have to get “needles”. He thinks he is going to turn into a vampire. We try to make jokes about it to lighten his emotional load. Let’s face it, as long as there is life, there is hope. Tell your friend that she must TRUST the child’s doctor, and make sure she asks lots of questions. I sometimes just stop the doc in the middle of his answers and say: “That was very interesting, now can you tell me in words I can understand?” He does just that. I too don’t know anyone else with a small child with this disease so there is no one I can talk to about it. Also, I have just recently learned that children with Graves qualify for SSI – social security disability income. It helps greatly to offset the medical and pharmaceutical costs. Tell her to call the local social security office for the information.
I was very hypothyroid at 4 years old. Did not grow for 1 1/2 years. Then I became ill with GD when 10. Out of school in 5th, all of 6th and move of 7th grade. But still surviving with GD. I’ll be 54 on Friday. I have 3 academic degrees and 2 careers ( science teacher and programmer). Also 2 healthy (so far) children and a wonderful husband. So I’m doing fine but don’t ask me anything about fractions or decimals cuz I missed all that in 6th and 7th grade stuff.