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  • Anonymous
    Post count: 93172

    Brenda, my grandson Matthew lives with me – he has had Graves for over 2
    years now. He just turned 7 in October. He wasn’t diagnosed until last
    Feb. I found an excellent specialist who I trust with this child’s life.
    It is extremely difficult on a small child. He grew a foot and a half
    between his 5th birthday and his 6th. He has been on several different
    medications – some worked better than others. He has adjusted to having
    this disease and hopes someday he won’t have to get “needles”. He thinks
    he is going to turn into a vampire. We try to make jokes about it to
    lighten his emotional load. Let’s face it, as long as there is life, there
    is hope. Tell your friend that she must TRUST the child’s doctor, and
    make sure she asks lots of questions. I sometimes just stop the doc in
    the middle of his answers and say: “That was very interesting, now can
    you tell me in words I can understand?” He does just that. I too don’t
    know anyone else with a small child with this disease so there is no one I
    can talk to about it. Also, I have just recently learned that children with
    Graves qualify for SSI – social security disability income. It helps
    greatly to offset the medical and pharmaceutical costs. Tell her to call
    the local social security office for the information.

    Post count: 93172

    I was very hypothyroid at 4 years old. Did not grow for 1 1/2 years.
    Then I became ill with GD when 10. Out of school in 5th, all of 6th and
    move of 7th grade. But still surviving with GD. I’ll be 54 on Friday.
    I have 3 academic degrees and 2 careers ( science teacher and programmer).
    Also 2 healthy (so far) children and a wonderful husband. So I’m doing
    fine but don’t ask me anything about fractions or decimals cuz I missed
    all that in 6th and 7th grade stuff.

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