[Anonymous March 30, 1997 at 7:00 pm Post count: 93172]

#1163265

I wonder if people with diseases other than thyroid are as frustrated as
ourselves. I can’t tell becasue i’ve never looked at any other BB except
for ours. It does seem that we are very overlooked and our doctors do
not know all the symptoms. They learn diagnostics (tests) and treatments
and don’t seem to understand how it affects our daily lives. Perhaps
because there is an overwhelming list of symptoms. Maybe we should find
a way to educate them through our BB. Any ideas, anyone?

[Anonymous March 30, 1997 at 7:03 pm Post count: 93172]

#1163266

Hello Lisa:

My vote is that you DEFINITELY need to ditch your current endocrinologist. From what you are describing, it sounds like your doctor didn’t take very good notes when they covered thyroids in his medical school curriculum. I’d say “statistically” that he’s probably a diabetes man, but certainly not a thyroid man. Try and find an endo with some direct clinical experience treating thyroid disorders, or one who has a sub-specialization in the same. Good luck!

Luci

[Anonymous March 30, 1997 at 9:52 pm Post count: 93172]

#1163267

Thanks for answering Luci. It doesn’t make me feel secure knowing that I have more knowledge about what I have than my doctor. I wonder if any doctor’s even take the time to read a BB like this? If so please reply.

[Anonymous March 30, 1997 at 10:09 pm Post count: 93172]

#1163268

Sometime I wish we could make all our Endo’s
Read and UNDERSTAND all that we go through.
It is soooooo frustrating to tell them what is wrong and they say “That
is not from the GD!.

[Anonymous March 30, 1997 at 10:58 pm Post count: 93172]

#1163269

Dear Lisa-

PLEASE, PLEASE find another endo. Tell your doctor to look up, in any common dictionary, the word MYXEDEMA or MYXOEDEMA n.
A disease caused by decreased activity of the thyroid gland in adults, and characterized by dry skin, swelling around the lips and nose, mental deterioration, and subnormal basal metabolic rate. Ask him what he thinks pre-tibal myxedema is?? If he wants a real hum-dinger ask him what acropachy is.

Jennifer

[Anonymous March 30, 1997 at 11:28 pm Post count: 93172]

#1163270

Jennifer,

Thanks for responding. I have hyperthyroidism. Can this condition (myxedema) be caused by Graves as well or is it only associated with a decrease in thyroid production?

Lisa

[Anonymous March 30, 1997 at 11:52 pm Post count: 93172]

#1056389

Hello,

I am so glad you are here to communicate with. I was just diagnosed with having an overactive thyroid. I have a moderately high free t4 level and an almost nonexistent tsh level. I have extreme fatigue, chronic rashes and heart palpitations. Through my diligent research on the web I found that I most likely have Graves Disease. When I went to the Endocrinologist he never mentioned Graves until I asked him if that’s what I have. His response was “statistically that’s probably what you have”. Isn’t there a test? He also said my chronic rashes (including lip and eye swelling), that I can treat with antihistimines, most certainly have nothing to do with my hyperthyroidism. After reading some of the postings here I am inclined to think I have a crappy Endocrinologist. What are your feelings.

Lisa

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