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  • Anonymous
      Post count: 93172

      Thanks for answering. As a matter of fact I have spoken to my family doctor and he is more than willing to supplement the yearly checkups I’m to do with the endo. Thank’s for the suggestion. What’s RAI?

      Anonymous
        Post count: 93172

        Yes I had RAI. Is that what most people with GD get. A few people I know were very surprised that my endo chose that route because I am under 35 (actually 32) and have been trying to get pregnant. Apparently when the excess radiation flushes through your body it passes through your bladder which is in between your ovaries and that could cause harm. When I heard this I called my “then” family doctor so I could get a referral slip from him to get a second opinion from another endo on the treatment. He wouldn’t give me the go ahead so I didn’t get a second opinion (very stupid on my part). He said that GD was very easily diagnosed and that my endo was top in his field and what he says goes. I probably should have just gotten a 2nd opinion anyway.

        I don’t think once a year is enough at this point either so I’m going to go ahead and call my family doctor and ask him to order me a TSH to see where I stand. I’m really sick of blood work though!

        Out of curiousity where are you in the world?

        I have Select Blue medical insurance which seems to be a pretty good HMO. My husband has Type 1 Diabetes and it covers him really well especially with all the supplies he needs.

        How long have you had GD?

        Are we still considered to have GD since we were hyper and had RAI and we are now hypo or normal?

        Anonymous
          Post count: 93172

          Hi Vicki, I was diagnosed back in 1991. Am still not stable on my synthroid. (four dose increases and suspect I am low again) Yes, once Graves’-always Graves’. The RAI kills the thyroid, but we still have the disease. Many folks never have any more symptoms, while others have many. The eye disease can show up at any time though my opthalmologist just told me this year that the likelihood does decline with time. By the way, I am in Ohio and receive my treatment through the military health care system. I really know very little about using RAI on younger women (I am 42) but it has been discussed here on the BB. I also did not know enough to ask a second opinion about the use of RAI, though I probably would have chosen to go this route based on what I now know. Take care!

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