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  • Anonymous
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    Post count: 93172

    Kelsey,

    First of all welcome to the BB. I am sorry that you have to go through this. From what I have read about RAI your symptoms for a time get worse as the RAI kills off you thyroid. There are other posts here and look at the ones for RAI and see what others have to say.

    One of my doctors for another illness that I have warned me no to thak anti thyroid meds cause I could react to them. So I understand how you feel. You best defence is to arm yourself with the facts at the top of the screen you will see a green thing that looks like a thyroid. Click there and go check out the links to other informative sites.

    Good luck you have foound a great place for support here.

    Diane

    Anonymous
    Participant
    Post count: 93172

    There is a NORMAL reaction, about one week (give or take) after RAI, when the thyroid cells damaged by the radioactive iodine release their stores of thyroid hormone into the blood. Not all cells are damaged at the same time necessarily, so we all have differing rates of response to this phenomenon. A week was the peak for me, it is different for others. So it is very normal to feel worse right after the RAI than you ever have before. It is simply an increase in your hyperactivity, and it goes away fairly quickly. (The half-life of thyroid hormone is approximately seven days for T4 and three-quarters of ONE day for the T3. So you can expect to have diminishing symptoms from here on out.)

    One other thing you must keep in mind, too, is that the treatment is a process. It isn’t a quick fix. First it takes time for the thyroid cells to die out. Then it takes time to get our thyroid hormone levels to the place where they are supposed to be. We just have to hang in and know that we WILL get healthy again.

    I hope this helps. I’m sure it was a nasty surprize to feel more rotten than ever. Your doctor should have explained it to you. I hope you are feeling better soon.

    Bobbi

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