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  • Anonymous
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    Post count: 93172

    How much press does the annual conference get? We would probably get huge amounts of press if we could get a well-known person to attend/be a guest. Would be nice if the Bush’s got involved. Is it confirmed that JFK JR. has GD? Maybe a little letter to his magazine would clue him in. Just some thoughts. I for one am ready to start shouting from mountain tops that we need some help/recognition. I’m beginning to feel like a dust bunny after being swept under the rug so many times!

    Anonymous
    Participant
    Post count: 93172

    I agree completely with what you are saying about this disease. Look at the attention AIDS has gotten in the last years, do you think this is because more people in the forefront of the news get this disease? I think that everyone who gets Graves’ has that awful feeling at some point that there are no really great treatment options. I almost felt indignant and appalled that there has been no research done and the treatments seem archaic. I wonder, too, how many people have Graves’ and don’t know because they have no outward symptoms. I would never have known if not for my eyes swelling up!

    I have greatly enjoyed and championed Dominic’s posts to the BB! I can not always see well enough to read all on this BB, but I do have a few close people who will read the posts to me. Please know that just because I can’t always post or read I do catch up on everything when I can capture a “reader”!! I will do anything to help get things going for Graves’ – please keep my e-mail address and let me know where and who to write, call, or whatever needs to be done to get some reaction.

    With hope for the future!

    Randi

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