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  • Anonymous
      Post count: 93172

      Hi DEE,
      Maybe backing off a bit might help. Hard to say. Sometimes fear or pressure drives ppl inward. She knows you are there if she needs advice or just a friendly ear to listen. Hope this helps.

      HUGS,
      JAN

      Anonymous
        Post count: 93172

        Good afternoon,
        I work with someone who has graves disease and I have done everything I possibly can in trying to help her. Eveytime I see her she is getting worse and worse. Her eyes have gotten real bad and are bulging beyond belief and her weight continues to drop. She indicates she sees an endo and an opthamologist. I have loaned her books, articles, etc and even shared doctors I have seen, etc. I mentioned about this BB and showed her how to get here, etc. Deep down, I think she just doesn’t care anymore about herself and
        as a friend I do not know what to do. Lately she has begun to avoid me as her eye situation has gotten worse. Maybe she is afraid I don’t know. What would you do? Do i just throw up my hands? We basically are friends just at work and do not see each other outside the office. An advice is appreciated!

        Dee

        Anonymous
          Post count: 93172

          Have had Grave’s for awhile-Doctor’s have always checked my TSH levels periodically–but am experiencing some strange things–loss of hair-eye blurred up one day like it was filling up with water-tired-sleeplessness-am on hormones for menopause and having bleeding problems–is some of this connected to Graves?? Just had my TSH levels checked and was given same dosage of Synthyroid. Should I be asking to have my T3 and T4 levels checked? I asked for bone density test and was told I didn’t need it as I am on Hormones yet I just read that if you have Grave’s you shold have a bone density test. Have just started to educate myself…dumb…dumb..dumb…should have started long ago. I was told by my old endo Doctor that my thyroid was gone so now I have turned Hypo…Please give me some guidance on tests I should have done..am currently under Family doctor practice and seeing a GYN doctor but have just about decided to see an endo Dr….This hair business–does it usually mean I am taking too much or too little synthyroid?

          Anonymous
            Post count: 93172

            I am no doctor, so the best advice I can give you is have an endo check it out. While family doctors are usually qualified to care for Grave’s patients, endocrinologists are specialists in dealing with the thyroid. I would suggest that you see one (even for just a consultation) and explain the symptoms you are having. I hate to use a cliche here, but you know your body better than anyone, and if something is wrong (which it sounds like there might be), you definately should get it checked out.

            Wish I could help you more – Please keep us updated on how you’re doing!
            Kristy

            Anonymous
              Post count: 93172

              Hello Texas. You have so many issues going that it would be hard to even guess what is causing what, and only a doctor should attempt that anyway. My suggestion to you is to see an endocrinologist who is experienced with thyroid disease, since many GP’s don’t have the latest information about adjusting thyroid replacement hormone.

              Hair loss can continue for a long time after a thyroid imbalance in either direction. I’ve been on the same dose of replacement for about a year, and my hair loss has finally slowed down. (For the last 4 years it has been falling out and growing in, so that I always have little stubbles all over my head of various lengths). Also, menopause issues can cause hair loss, so again your doctors will have to sort out the cause.

              You said your doctor told you your thyroid is dead. Many people seem to be told this following RAI, when actually there is usually some thyroid function left which diminshes as time goes on, requiring upward adjustments in replacement hormone.

              Not many doctors like to be told what blood tests to order. My endocrinologist has checked my Free T-4 and Free T-3 along with the TSH, when symptoms warranted. If you are still having symptoms within the “normal range” you would probably do well to find a doctor who will adjust your replacement within that “normal range” until you feel normal for YOU.

              Welcome to this board, and I’m glad you’re becoming an informed and involved patient.

              Dianne W

              Anonymous
                Post count: 93172

                Losing excessive amounts of hair can be associated with being hypothyroid.

                When I asked my GP about the bone density test, he went through a checklist that had to do with whether someone was at-risk. Issues that add up to at-risk include body build, race, age, Graves, and a few other factors. Since I seemed to be in a higher-than-normal risk group, my doctor ordered the test. But the thing is that you are already on replacement hormone for menopause. That is one of the main treatments that doctors use to help forestall the development of osteoporosis. If you did take a bone density test, and showed up with some bone loss, the question is whether there is anything ELSE that your doctors could do to help you. I’m not sure that there is. That’s perhaps the question you need to ask of your doctor. He may have told you that you don’t “need” the test, because you already are doing a treatment that is considered optimal for stopping bone loss.

                Bobbi — NGDF Asst. Online Facilitator

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