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  • Anonymous
      Post count: 93172

      I met a women (through work) who had Graves for a number of years and had ATD on and off until just recently when she took RAI about a month ago (1 big dose).

      She never developed the proptosis but has “mild but noticable” lid lag (upper). I told her about this forum but she has no computer…so I ask on behalf of her :

      How long does it usually take for the thyroid hormone induced lid elevation to subside ? When she becomes euthyroid or hypothyroid ?

      I guess this case is somewhat similar to that of Kay’s !

      Thanks…..

      Anonymous
        Post count: 93172

        Sometimes the lid will go back on their own, sometimes you have to have it done surgically (as I have done with both eyes). RAI does not mean your eyes are cured.

        debra

        Anonymous
          Post count: 93172

          Debra, thanks for the reply.

          Actually, this person I know has noticable upper lid elevation (although relatively mild) but doesn’t have any other eye involvement per se.

          She experiences no discomfort (dry eye, double vision, partially closed lids in shut position or protrusion of eyeballs…etc). I guess this is the reason why she was suggested to go the RAI route by her Endo.

          I told her (from my web surfing) that the lid elevation is due to the high Thyroid hormonal levels and would subside once she is non-hyper.
          In any case, I suggested that she see an eye specialist just to be safe.

          Can anyone shed some light as to the % of Graves’ patients who only exihibit this transient eye symptom and never develop the actual eye disease ?

          Bye….

          Anonymous
            Post count: 93172

            Had anyone ever been told they have “lid lag”? I’m seeing both the Endo doctor and the optho doctor next week, but my GP told me my left eye lid lagged when I followed her finger with my eyes. I’m definitely hyper, and hopefully the uptake scan I get next week will tell me for sure whether or not I have Graves . . . I have all the symptoms. Many thanks!

            Anonymous
              Post count: 93172

              Hey,

              Congratulations that is exactly the way i was discovered. Left Eye lid lag, I also had all of the symptome. It has been 5 weeks since my diagnosis. I was put on PTU and now i feed tired pretty often. That is quite a change from being an insomniac.

              Lisa

              Anonymous
                Post count: 93172

                Copuld someone tell me , what is lid lag?

                Anonymous
                  Post count: 93172

                  I WOULD JUST LOVE TO TELL YOU WHAT LID LAG IS BUT i DON’T KNOW MYSELF i HAVE BEEN WAITING TO SEE YOU GET A REPLY AS i really don’t know but good luck to you I hope some one will answer you soon.

                  Anonymous
                    Post count: 93172

                    Yes, Barb, Im just sitting here waiting too. I just know some kind person will respond and give us the answer to our question.

                    Anonymous
                      Post count: 93172

                      Hi, Christina and Barb!

                      From the NGDF’s Bulletin #7, “Thyroid Eye Disease – Double Vision
                      and Loss of Vision” by Robert H. Spector, M.D.:

                      “Lid retraction gives the hyperthyroid patient their ‘bug-eyed’
                      appearance. The eyes seem prominent either because they are pushed
                      outward, a term referred to as proptosis or exophthalmos, or because
                      the upper lids are abnormally pulled back and the white portion of
                      the eye (sclera) shows more than usual. Normally, the upper lid just
                      touches the upper border of the iris and the lower lid just covers
                      the lower iris margin, so there is no ‘scleral show’ between the top
                      and bottom of the iris and the surrounding sclera. When scleral
                      show is present with the eyes looking straight ahead, there is lid
                      retraction, and when it occurs as the patient slowly moves their
                      eyes downward, it is called LID LAG. Lid retraction and lid lag may
                      occur in one or both eyes; it can be asymmetric, intermittent, and
                      sometimes quite subtle. Although lid lag and lid retraction occur
                      most commonly in patients with thyroid eye disease, it can also be
                      seen in a number of other neuro-ophthalmic disorders.”

                      Wishing you good health and happiness, Debby

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