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Yes, Jen, it does get better. But not necessarily without some ups and downs. Sometimes, a dose of replacement hormone that was fine, becomes either not enough, or a tad too much. Adjustments usually quickly put things right. I hope you’re feeling better soon.
Bobbi — NGDF Online Facilitator
Hi All,
I haven’t been on the board in awhile, since I was feeling pretty good. I am 9 months post RAI, and last time I checked (2 months ago), my TSH was at .08. I’ve been feeling about 75% recovered, when all of the sudden I have become exhausted and completely unfocused, almost in a fog. I can’t concentrate on anything, and all I want to do is sleep (which isn’t happening with a 4 year old and a 11 month old!). I had labs drawn yesterday, so I’m waiting for the results. Has anyone felt “better”, and then had a setback? I was already dissapointed that I was not 100% better, so now I’m feeling even worse. My mood is terrible, and I feel bad for my family. I wouldn’t want to be around me. Does this ever get better????
Sorry to vent!
JenI’m kind of in the same boat. I went hypo after RAI over a year ago. Many med adjustments since then. I am on Synthroid 135 now, just got recent lab results and am at .9 TSH. I was at .8 on the 125 dose. Just can’t seem to get my TSH up. I am in the “normal range” for my lab. The very, very low end. Feeling better than a year ago for sure, but not great. It is discouraging. But what can ya do. Keep on swimming!
Carys
I agree with the other responses. It does get better. I am going through the “tad too much” after being on this does for 2 years, suddenly I need a change. I too can not concentrate and I have a 2 yr old as well. I’m also forgetful and irritable and emotional. I am looking foward to the next few weeks and hoping that I will be feeling better. Please remember when numbers are involved we are all different. My Dr. listens to me and how I’m feeling and goes off of that. In keeping track of my numbers over the years, I know that I feel the best when my TSH is between 1.5-2. In the publications I’ve read they keep changing the normal range but my Dr. considers the normal range 1.5-5. There are people I know who feel best at 5 and Doctors I’ve talked to that say no one knows what is normal.
You sound a little hyper and yes it is so frustrating. I was single when I was diagnosed and it’s harder to deal with this with my husband and my son. How lucky I am to have a family. How lucky we are to have this board. Hope you have a better day.Well I got my results. My TSH is up from .8 to 1.07 and my doctor wants to up my dose to 150 from 137. I’m confused because my symptoms seem to be both hypo and hyper. Can you get the trouble concentrating when you are hypo? I don’t have any heart symptoms like when I was hyper, mostly just very tired and “foggy”. Do you think he is correct in raising my does to get my TSH down?
Thanks everyone!
JenIt is really a decision that has to be made by you and your doctor. Everyone feels different with there levels at a different number. Personally I feel best when my levels are over 1.0. Other people feel better lower and some even higher so it is really on your symptoms.
Katie
If I was in your situation, I would ask why they wouldn’t try somethin a little more personalized. I would be afraid of going hyper with a jump in dose like that. And for a long time I’ve been taking one dose for 6 days and a lower dose on the 7th day every week to stay normal. the pills just didn’t come in the does I need.
Many of the symptoms from hyper and hypo are similar. I’ve found as I hang in there an keep communicating with my Dr. we eventually figure it out.I know this is something I should be asking the Dr., but he has never had this, so need answers from someone that has. I am hyper with Graves and about 1/2 way back to being normal(?). Last night I couldn’t stay awake to watch a favorite show. This morning, I would love to bite some ones head off. I yelled at my kid. Of course, she is a teenager and decided before leaving for school and work, she need money. I still should have been so mad.
The Dr. on Monday upped my medicine (Tapazole). I was taking 30 mg at night, now I am taking 20Mg in the morning and 20 mg at night.
I guess my question is, “Are these feelings normal ?”
Julie
PS: Hubby knew and asked me to lunch to help me feel better.
HI Im sure the moderators will explain this better but yes that is normal. apparently when we are hyper it is like running a marathon to our bodies and we feel extreamly tired because our bodies do not get rest. Does this make sense? Also the feeling irritable is also a part of having Graves, I was so irritable last year I was always taking it out on my husband and did not know why. I then found out I had Graves. Also I have found that by listening to my body and resting when i need rest it has helped. I hope you are feeling better soon and hang in there, there is an end in sight.
Can you remember puberty? (Think about the teenage daughter.) Pregnancy? Postpartum? Typically, whenever we are experiencing hormonal imbalances, our emotions go off kilter. Right now, you have a major hormonal imbalance.
Add to that, you ARE extremely fatigued right now. Being fatigued leads to off-kilter emotions, as well. Most people think that having too much thyroid hormone would be a pepper-upper. Well, in infinitesimal doses, maybe it is. But when we have hyperthyroidism every part of our body is working too hard, 24 hours a day, 7 days a week. And it makes us very, very tired.
My recommendation is to slow down, eliminate unnecessary tasks, and take really good care of yourself until you have been at normal levels of thyroid hormone for a few MONTHS. Try to imagine that your best friend feels the way you do right now: what would you advise her/him to do to take good care of her(him)self? Take whatever advice you would give and do it for YOURself. We usually do not take as good a care of ourselves as we would our best friend.
The fact that your doctor just raised your dose of Tapazole indicates that you are still somewhat hyper, and probably not “half-way back to normal” in any sense but one: you have been diagnosed and you are being treated. That’s good. But we need months “at” normal levels of thyroid hormone before our bodies are healed and normal again.
Hope that you are feeling much better, soon.
Bobbi — NGDF Online Facilitator -
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