Post count: 93172

    hi Not only am I new to the board, but I don’t have the disease my 12 year old grandson does.
    I had no idea that this condition existed and except for the few words we got from the “endo” we still know
    little or nothing.
    Kaly seems to be having a time of it he was fast approaching the puberty stage so, we missed
    noticing the changes in him for a long while and thought his behaviour
    was “bad” poor kid. One day I looked at him and thought he was going “mad”
    his eyes were popping out of their sockets and he looked as if he’s taken
    something to make him “High” fact is he is still a little boy and takes nothing at all.
    I’d be happy should anyone care to e-mail me and clue me in to this condition Thank you
    Grandma G.