Anonymous
Post count: 93172

Let’s see, Karen. My eyes were getting pretty bad when I was diagnosed. I had a little bit of double vision at that time, but as soon as they put me on steroids, the double vision got bad and has been that way since. After about 6 months on prednisone (up and down on the dose), they did orbital Irradiation to try to stabilize the eyes, it helped some. I was still blind off and on depending on the prednisone dose (kept trying to get off it) for another year before one last blast of prednisone seemed to do the trick and I got my sight back, enabling me to get off the steroid.

It’s almost four years now and my eyes are looking almost normal, except kinda irritated a lot.

Let me know if you have any more questions!

Bruce