Post count: 93172

The emotional side of this disease is not nonsense. It is very real. I have had
trouble with support from my family. They just dont get it, and they can’t get it.
This disease is beyond their scope of thinking. For me, it was because I just looked
tired all of the time. It even took the doctors quite awhile to figure out what the
heck I had. As for my family, they try, and they get really frustrated. I have gotton
better at stating my needs. I say things like, “I need to be alone now” or “Please do
this for me….” It is a never ending stuggle, but well worth it. It has been 3 years
and my family is coming around, yours will too….best of luck….Carolyn