Viewing 6 posts - 1 through 6 (of 6 total)
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  • Anonymous
    Participant
    November 18, 1996 at 9:33 pm
    Post count: 93172
    #1167868

    John,

    Prior to my second dose of RAI, I was taking .050.
    They did a radioactive iodine uptake. My TSH was 0.17.
    They did alot of other blood work and then they recommended
    the second treatment.

    Dave

    Anonymous
    Participant
    November 19, 1996 at 1:08 am
    Post count: 93172
    #1058173

    Dave

    Thanks much for your response.
    How low did you go on dosage before you had the RAI?

    John

    Anonymous
    Participant
    November 20, 1996 at 3:10 pm
    Post count: 93172
    #1167869

    I had RAI one and a half years ago. I started at a dosage of .175mg
    and have slowly gone down in dosage to .025mg. Anyone out there who
    has had such a variation over so long a time period?

    John

    Anonymous
    Participant
    November 20, 1996 at 6:37 pm
    Post count: 93172
    #1167870

    Hi John! It’s been over six years since I had the RAI treatment, and since then my hormone replacement dosage has changed several times. I’ve been as high as .175 mg to as low as .1mg. It seems each time I have my TSH checked lately my doctor adjusts the dosage.

    It’s my understanding that it takes many years for the thyroid to completely adjust to the treatment. It was about four years after RAI that my endo said that my thyroid gland was gone and that my dosage would have to be closely watched to regulate it accurately.

    So, maybe your thyroid is still in the adjustment stages. Correct me if I’m wrong, anyone!

    Debby

    Anonymous
    Participant
    November 20, 1996 at 10:39 pm
    Post count: 93172
    #1167871

    John- I had RAI twice. I started out on a very low dosage, and now I am
    up to .125. This is where I have been since about June. It takes a while
    and a lot of adjustment to get used to all those varying dosage, but I can
    relate to you on the varying dosage. it certainly is not fun!
    Take Care–Jodi

    Anonymous
    Participant
    November 21, 1996 at 6:48 am
    Post count: 93172
    #1167872

    Jodi
    Thanks for your response. Could you tell me your experiences leading
    up to your second RAI. How rapidly did you vary dosage until the second
    RAI? How low down in dosage did you go before the second RAI? How much
    time between the first and second RAI? On what basis did your doc suggest
    a second RAI?

    John

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