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  • Anonymous
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    Post count: 93172

    The local support group meets usually at Barnes and Noble book store in Rochester Michigan , on Rochester road just north of Auburn road. For the Detroiters out there, I got an East sider West sider joke: On the East side, an outie is a belly button, on the West side, an Audi is a car. Happy New Year. Where is Tri Cities Michigan? Are you an East sider? <g/>” title=”<g>” class=”bbcode_smiley” /> Karen  </g></p>

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    Anonymous
    Participant
    Post count: 93172

    Thanks KarenB – I’m not that far from Rochester, MI
    Tri-Cities are Midland, Bay City, Saginaw, I’m in Saginaw area.

    This BB has overwhelmed me and left me speechless!! Very unusual,
    the speechless part – be thankful :-} SueC

    Anonymous
    Participant
    Post count: 93172

    Hi, I’m Renee in Maryland. I was diagnosed with Graves Disease in
    October 96, but I feel I was at first Hypo for a few years. I’ve
    suffered from the dreaded rash, joint pain, Igor eyes and when I went
    Hyper, an approx. 40lb weight loss down to 95lbs from (at hypo last year
    140lbs. I also had an extreme chocolate milk addiction while Hyper.
    I had RAI in Nov, one month after my diagnosis, due to my allergic
    reaction to the medication I was taking for Hyper. Should I be waiting
    for the bomb to drop? Unfortunately I now have no insurance.

    Anonymous
    Participant
    Post count: 93172

    Jake, What is the e-mail address?

    Anonymous
    Participant
    Post count: 93172

    Just heard from a friend. His wife has a real jerk of an endo who
    doesn’t answer questions. She has racing heart, weight loss, and
    an uptake of 50% (15-30% normal). This is all very new to them. They
    just had their first child within the last few months and are
    questioning how to know if it’s post partum thyroiditis or Graves’.
    Endo is pushing RAI, but they don’t want to do that unless it
    definitely is Graves’.

    Since my babies are grown, I haven’t paid much attention to the
    post partum stuff. How do the docs know which it is?

    Also, they are questioning the difference between Tapazole and PTU.
    My doc said they were the same with a molecular difference (so how
    can they be the same????).

    They need some quick responses – I’ll pass the info to them.

    Thanks everyone!
    DonnaN

    Anonymous
    Participant
    Post count: 93172

    I have just been dianosed with GD and would like to know about any alternative therapies, i.e. diet, exercise, etc. Does anyone out there have any new information for me? Please, I would like to know. Thanks. Sharon

    Anonymous
    Participant
    Post count: 93172

    just got the word i have graves…got 2 opinions
    don’t want drugs…looking for a natural cure
    are naturopaths for real? any info would help.
    txs

    Anonymous
    Participant
    Post count: 93172

    dave, sorry to hear the news, but don’t be too quick to dismiss the
    drugs. a beta-blocker will let your heart rest – nothing to play with.
    second – most synthetic drugs come from some herbal beginning. be
    good to yourself – i had always exercised before in a hurried up way,
    now i swim a mile a day and really take time out to be at peace.
    i took this as a wake-up for a better and less stressful life. good
    luck.

    Anonymous
    Participant
    Post count: 93172

    I can’t urge you strongly enough to get adequate and traditional medical
    treatment. There are 3 treatments, antithyroid medications, RAI, and
    surgery. All are safe and effective. Untreated Graves can be fatal.
    There are also some positive effects from alternative therapies, but
    they should not be used in place of effective safe treatment we are
    lucky to have.
    From one who should know. 44 years with GD and STILL counting.
    Don’t worry (anxiety is a symptom of hyperthyroidism).
    As much as I complain about specific situations, life has been very
    good to me. I was not expected to live past 12 and the last 44 years
    HAVE been a gift.
    Get treatment, put it behind you and enjoy the rest of your life.
    Of course, I’m in a great mood today ‘cuz I landed TWO jobs!
    Hooray for Joan!
    Rah! Rah!
    … And good luck! Keep in touch.

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