[young9319]

in reply to: Anyone NOT gain weight after RAI? and VENT #1064897

Thanks alot for your replies. I get to see the doctor on the 21st of Dec and we’ll see what happens then. I know the gaining of muscle is good and to be expected, but I dont understand how so many people who report healthy eating, excercise etc can pack on 50, 60 + lbs and all their labs be normal. I know we’re all different and one persons response to treatment in no way means my response will be the same as that. I just get really anxious to see that kind of experience repeatedly and hear that labs are normal and the doctors say nothings wrong. But I’m excited to get my labs done in a couple of weeks and see where I am and what the endo will suggest at that point.

[young9319]

in reply to: Anyone NOT gain weight after RAI? and VENT #1064894

I am SO glad to found this site. Sept 2011, I was having the worst muscle weakness and numbness and tingling. I thought it must be MS (I’m an RN). Out of sheer panic, I went to my doctor, they did lab and my TSH was not detected. My T4 was over 12. I was dx with Graves Disease. Got RAI approx 3 days after the diagnosis. I went back to the follow up visit after RAI (6 wks later) and my T4 was 7.08, TSH was <.008. Drew lab this week (b/c I dont think waiting 4-6 weeks to see if I’m hypothyroid is even sensible) and my T4 is now 1.46 and the TSH is .015. I would never want to sound vain, but I have worried myself into a frenzy panicking about potential for wt gain. I’ve had the wonderful privilege of not having to do ANYTHING to maintain my weight. I recognize excercise is important despite any dx, and I intend for overall health to do more and get on a routine. My endo assured me that I’d probably only gain about 5 lbs. Educating myself has shown me that he cant determine that… I called this week to get the MD to see if its time to start medication in the next week or so, well of course he didn’t agree. From my reading about this particulary period after after RAI, the T4 may fall and return to normal earlier than the TSH returns to normal. How low will my T4 need to before medication is appropriate. The ref values for the lab I use is .84-1.77. Is it not sound thinking to base my insistence on medications based on how I "feel". Right now, I feel GREAT!. My heart rate is normalized, wt stable, sleeping wonderfully, calm as a cumcumber. I guess I need reassurance to sit tight and wait it out. Im really headstrong, and I intend to pilot this part of my health, it just goes against my logic to WAIT until I become hypothyroid to do something. That to me is like waiting for breast CA to get a mammogram. At any rate, please give me some guidance so that my rationale mind can speak with the irrational part and make the best decision.

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