[wmlpm]

in reply to: 2 RAI rounds…now TT…Help… #1063743

hi everyone good wishes to all.
Regarding ted and acropachy there is a receptor in the blood (sorry cant remember what its called)but the endo can test for it. This receptor causes all the swelling with both ted and acropachy. And when it comes to acropachy its not really swelling, It is new soft tissue and bone growth. The bone growth will show up on x-ray. And as of now the docs really dont know how to treat this. But there is always hope.
Feel well
wendy

[wmlpm]

in reply to: 2 RAI rounds…now TT…Help… #1063738

Hi
Sorry to hear that you have to fight so hard to be well.Ive been doing the same for 17 yrs. I would really love to hear about any info you might have re thyroid acropachy, Ive known that i have it for about a year but cant seem to find a doc. that knows about it or has treated it.I have a history of graves finally had thyroid removed after 2 rai. history of ted also. Had orbital decompression muscle and lid surgeries.
Hope we can some how help each other.
wendy

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