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in reply to: Went hypo..on levoxyl..when does it kick in? #1066734

Kimberly and Ski, thanks so much for your responses. Now I have some reference material for our next discussion. I got the call today that my labs done yesterday confirmed I am now hypo and starting on levoxyl today. I’m really ready to be starting on the road back to "normal"!

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in reply to: Went hypo..on levoxyl..when does it kick in? #1066730

Enough3, reading about your experience is very encouraging to me. I’m 5 weeks post-RAI (Susan and I had ours on the same day). I felt a few of my hyper symptoms returning about week 3 or so but they were minor compared to how they were before. What hit me this week is utter and TOTAL exhaustion… I’ve been working full time and taking classes at night but this past week I wasn’t even able to make it through my 8 hour workday without an hour nap at lunch (thankfully my manager is very understanding – but then I didn’t really give him a chance to be otherwise ). I’m wondering if I’ve turned toward hypo full force this quickly after RAI. I’m scheduled for bloodwork on Tuesday and have an appointment with my Endo on the 23rd. I’m REALLY REALLY hoping to start replacement soon because this exhaustion is a little more than I expected and it’s really exhausting to me. ” title=”Wink” />

Susan, I noticed you said your dose of RAI was 10mcl – mine was 29… I guess that may be why I feel so not normal but you don’t yet. Hang in there… WOW – I think I need a nap!

Kelly

PS – On a side note, my husband who has been wonderfully supportive 99.378% of the time during the last 6 months I’ve been dealing with this said something odd to me recently… "It’s not like you still have Graves’ Disease because you did away with your thyroid. You’re only hypothyroid now, right?" I really had no answer… my thinking was once diagnosed with GD, I’d always have GD. I’m hoping he was just having an off day, but if it comes up again, any ideas on how I can enlighten him?

[Waiting4Answers]

in reply to: people just don’t understand, and i don’t either. #1066793

Billy, yes, we’ve all been through those feelings and emotions at least once in our GD lives… Good news is that the mood swings get fewer and fewer between. After a couple of very emotional situations (one with my boss!!), I took the bull by the horns so to speak and now I try to step back to look at the situation outside my emotions. What I mostly find is that I’ve blown the situation way out of proportion and it’s really not that big of a deal. At times I still utter words that should not be spoken under my breath, but have learned NOT to direct them at my family, friends, or co-workers. GD has not been an easy disease for me to wrap my arms around even when I’ve been in the middle of battling it so I can’t expect those around me who aren’t living with it to understand fully either. It really doesn’t help matters that none of us look "sick" but I keep reminding myself how lucky I really am. I have a friend and co-worker who is seven years younger than I am. He and his wife have three small children and he is battling a brain tumor and praying for miracles. So yes, by putting things in perspective, I really amy lucky that I ONLY have GD. Hang in there… it does get better.

Kelly

[Waiting4Answers]

in reply to: How long did it take you to go hypo after ablation? #1067057

Susan, when I think back, I’ve probably been dealing with Graves for many years, but during the first part of October many of the symptoms hit me like a train – itching, sweating, heart racing, tremors… thought I was going crazy for awhile. My PCP was quick to start testing my thyroid function and I was officially diagnosed by the 23rd. Saw the endo for the first time mid-November and he started me on 20 mg tapazole. I was feeling almost normal prior to Christmas but knew I wanted a long-term fix and am really wanting to get off the beta blocker as soon as possible – so here I am scheduled for RAI. I haven’t had any major eye problems yet, but that is an underlying concern. I go in tomorrow to discuss things with the nuclear med folks and then back Friday a.m. for the treatment. My endo said I didn’t have to be isolated for any length of time – just to limit time with pregnant women and children and to keep everyone at least arm’s distance away for several days. I’m a little anxious but looking forward to feeling much, much better than I have for the last couple of months. Keep me posted on how you’re doing and I’ll be thinking of you on Friday.

Kelly

[Waiting4Answers]

in reply to: How long did it take you to go hypo after ablation? #1067053

Hey, Susan! I’m scheduled for RAI on the 8th also. A little nervous (more so since I stopped taking tapazole on Friday), but I am definitely ready to move toward controlling my Graves instead if having it control me.

Kelly

[Waiting4Answers]

in reply to: 1st Appt – What should I expect #1067445

Well – I made it through the appt even though they left me sitting for longer than necessary as they forgot that I needed blood drawn. My husband was a big help with the questions (asking several I had forgotten about). I’m starting on Tapazole for six weeks to get my levels down. The dr is strongly suggesting RAI but I’m not totally convinced that’s the way I want to go yet. Glad I have a little time to decide. Thanks for everyone’s help and suggestions!

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