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  • VanIsleGal
    Participant
    June 5, 2012 at 1:35 pm
    Post count: 66
    in reply to: Not Stabilizing on Tapazole #1172258

    Honestly Harpy, I wish I had the option for the surgery after my 1st time with Graves’. I only had the option of RAI and won’t do this. I don’t know if your worst blood results are an indicator of Graves’ coming back? Knowing what I know now, I would never have done this remission route. Now living in a different city, I can have the surgery!

    VanIsleGal
    Participant
    June 5, 2012 at 1:27 pm
    Post count: 66
    in reply to: Not Stabilizing on Tapazole #1172257

    Thanks for your kind messages. My doctor was shocked with the results and put me on 40mg a day Tapazole and said if this didn’t work in a month I would need emergency surgery. Wouldn’t surgery while hyper be risky? Oh Adenure, I am worried for my liver now!

    Harpy, I have had Graves’ 3 times. First time I was on PTU for over a year (a little under 2 years) and then in remission for 5 years. The last time I stayed in remission for less than 2 years after a stressful move. My diet, meditation hasn’t really changed, except I can’t exercise with Graves’ as I am very weak. I can barely get out of the bathtub I am so weak. I was able to go on disability so I am not working a lot now. I am a university educator. I find my mind isn’t sharp enough to do my job well right now. Let me know if you have any more questions Harpy.

    Take Care Everyone! xoxo

    VanIsleGal
    Participant
    May 6, 2012 at 12:05 pm
    Post count: 66
    in reply to: TSH not Increasing #1171681

    Thanks for this Kimberly! Yes my Free T4 was halved in a month, so almost in the normal range and Free T3 is high. The antibody test was sent to Vancouver so won’t be in for about 10 days. I get the other test results online in a few hours. I didn’t know about the TSH not moving, so feel better now knowing it is quite typical!

    VanIsleGal
    Participant
    April 25, 2012 at 4:35 pm
    Post count: 66
    in reply to: Complications of Surgery #1171424

    Thank you for this Bobbi! I hadn’t found this info online yet! This scenario must be extremely rare. I have heard of the one chord being cut and the loss of voice that occurs.

    xoxo

    VanIsleGal
    Participant
    April 25, 2012 at 4:25 pm
    Post count: 66
    in reply to: Diagnosed as a child..? #1169232

    Your story is so disappointing. Have you talked with an endocrinologist? I haven’t had my surgery yet, but I hope to feel much better after. I have had Graves’ 3 times now and in between, during remissions, I thought I should have felt better. I read a book awhile ago (forget the name) and it talked about disability for some people after treatment.

    I hope you hear from others that can relate.

    xoxo

    VanIsleGal
    Participant
    April 23, 2012 at 4:09 pm
    Post count: 66
    in reply to: Cancer Risks of Radioactive Iodine Treatment #1171070

    Hi LillyL!

    We have the same endocrinologist! I see him on Wednesday and am happy to read and hear about his good reviews. I am really hoping for surgery. I still feel terrible and am waiting for my levels to go back to normal.

    xoxo

    VanIsleGal
    Participant
    April 5, 2012 at 11:13 pm
    Post count: 66
    in reply to: Cancer Risks of Radioactive Iodine Treatment #1171067

    The endo that told me about surgery complications is now retired and he wasn’t the one doing the surgeries. This surgeon might still work in my current city…I don’t know his name. I think the endo told me the vocal cord could be cut by accident? I am in a different city now and am hoping my new endo will allow me to have the surgery. I would hate to have my voice gone permanently though. Has anyone else heard of this complication?

    Enjoy the weekend xoxo

    VanIsleGal
    Participant
    April 5, 2012 at 1:04 pm
    Post count: 66
    in reply to: Cancer Risks of Radioactive Iodine Treatment #1171065

    Thank you everyone for the responses! My endocrinologist just called and told me to go to the hospital, so I will be quick! My previous endo refused to treat me again with medication. He told me I would have to do RAI. He refused to do the surgery as a few of his patients lost their ability to speak or had complications. Now I am going to a great hospital where there are 4 endos so I don’t know what I will be told. My previous endo is 2 hours north as I moved in the fall.

    Here is the link about increased cancer rates: http://www.breastcancer.org/risk/new_research/20070604.jsp

    I also am at my max for radiation from my kidneys, so I don’t want more radiation. I am infertile from radiation as well. I believe RAI is not so popular in Europe due to radiation risks.

    I will go to emergency now, hope you are all having a good day! xoxo

    VanIsleGal
    Participant
    April 4, 2012 at 11:07 pm
    Post count: 66
    in reply to: Thyroid – Graves Doctor or Support Group Victoria BC #1170951

    Hi Lilly!

    I live near Victoria and my Grave’s just returned for the 3rd time. I have refused RAI treatment fearing it is not safe. I just moved from Nanaimo, so I don’t have an endo here. I think all the stress in the past year, including the move, triggered my Grave’s. I am 41. Would love to talk! I hope you are feeling better!

    VanIsleGal
    Participant
    April 4, 2012 at 5:16 pm
    Post count: 66
    in reply to: Still Feeling Miserable #1171007

    My Grave’s has returned for the 3rd time. My 2nd endocrinologist put me on the beta blocker, Bisoprolol permanently due to heart palpitations. He said take more than the maintenance dose if Grave’s symptoms return and it really helps! I wonder if this would help minimize your symptoms?

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