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in reply to: RAI or Surgery? #1172997
I am in your situation too! I don’t know if I should choose RAI or surgery. I saw my surgeon today.
Keep us posted and I hope whatever you chose goes well! xoxo
in reply to: Just dropping in after TED orbital Decompression #1170542Jules, how horrible! I am always struck with the fact you have to pay for a doctor or check to see if your insurance covers certain doctors/procedures. As if EVERYTHING isn’t stressful enough! I swear I couldn’t cope with the insurance/pay the doctor thing.
I hope you get better soon xoxo
in reply to: Liver Function #1173035Thanks Kimberly!
My liver function results are all normal!
So happy! I always get my blood results online in about 3 hours!
Nice that I never have to wait or have to call my doctor every month.
xoxo
in reply to: Liver Function #1173033Thanks Alexis! I am going to the doctor today. I will be far from home soon and don’t want to have concerns while away! I am on my 3rd endocrinologist and haven’t been happy with any of them. I am starting to wonder about specialists! I have kidney problems so I have dark urine regularly. I don’t have the other symptoms. I got hepatitis when my pancreas was blocked by a gall stone. I don’t have yellow eyes now though.
in reply to: RAI or Surgery? #1172992Hi! I haven’t had my surgery yet but this is what I have chosen after having Graves’ 3 times. The increased cancer risks with RAI scared me even though the risks are not large. I just couldn’t bring myself to do RAI. I have heard it is not used much in Europe where surgery is the favored method of treatment.
Keep in Touch and let us know how it goes! xoxo
in reply to: TSH not Increasing #1171682It has been .06 for at least 4 months, not .04. When I asked the endo why this hasn’t moved at all he said it wasn’t detectable, that it is lower than .06 but the test doesn’t detect lower. That is why having Grave’s 3 times I have been at .06 so often! I thought this might be helpful for others!
in reply to: Newly diagnosed and scared #1172647I remember being diagnosed! I had just met a new guy that I wanted to date! He found out I had Grave’s and knew it could make me crazy, so he dumped me! I don’t live near any family, so I was on my own. I have Grave’s for a 3rd time now and will have the surgery soon.
Hope you have a speedy recovery!
in reply to: My Thyroidectomy #1172641Happy your surgery went so well! I didn’t know the surgery would take so long! And the incision is quite large. I am scared my voice will change!
Speedy Recovery!
in reply to: Not Stabilizing on Tapazole #1172275Hi ncpatches! I just saw your post! We posted at the same time! Did you have any side effects taking 40mg? Yesterday I was very nauseated. I threw up for 6 months when taking Tapazole before. My dose at that time was 20-30mg. I can’t remember why I didn’t ask to go back on PTU. I took 20mg yesterday instead of 40mg so I am not nauseated today. Tomorrow, after taking 40mg I might be sick again.
Hope you are good!
xoxo
in reply to: Not Stabilizing on Tapazole #1172274Rebecca, thanks for the great info! I was tested for antibodies, but I don’t know about Hashimotos. My endo said my antibodies showed I have Graves’ plus I had the iodine uptake in the past.
Cat, I don’t know details with what happened to my heart. It is something minor, but my heart rate stayed above 100 even when my blood levels were normal. I took a low dose of beta blocker when I was in remission. I didn’t have the option of surgery until now, because I moved 2 hours south to a bigger city. I wanted the surgery after the 1st episode, but my endo at that time wouldn’t send me for surgery. I refused RAI. I have given up on natural remission. I wouldn’t recommend it. I have lost so much having this disease flare up 3 times. I am trying to get my career back on track. I am very fortunate to have an amazing partner who is very understanding and supportive. When I was crazy he knew it was the disease, not me.
I will look at your story Rebecca!
Hope everyone is doing okay! Happy Weekend!
in reply to: Not Stabilizing on Tapazole #1172271Ya I have never been hypo, but had Graves’ 3 times. I take propranolol but prefer the once a day bisoprolol. I damaged my heart the 2nd time with Graves’ so I take beta blockers for life now.
Thanks Shirley!
in reply to: Not Stabilizing on Tapazole #1172268Hi Shirley. My symptoms are the usual ones, 120-150 heart rate without beta blocker, worsened asthma, leg swelling, thirsty, diarrhea, no sex drive, boils, lack of concentration, mind fog, eye pressure, shaking, hair loss, tired, very weak. Are you asking my symptoms in relation to the surgery? I think the endo put me on 40mgs a day so I can be a candidate for surgery in the next few months.
Thanks for the surgery report. I am presuming 40mgs has to work to get the T3 and T4 normal. I am on that dose for at least a month until I see endo and have blood tests.
xoxo
in reply to: Not Stabilizing on Tapazole #1172265Thanks a million Alexis! I will have a look tonight! I might have to call the endo back as I don’t understand him. It sounded like he would send me for surgery if my levels stayed off the chart like now. I guess on 40mg this would be unlikely.
Ugh take care Alexis!
in reply to: Not Stabilizing on Tapazole #1172262Does anyone think they would take out my thyroid if my levels are hyper? That is what I understood from the endo today. What happens if you need emergency surgery when hyper? :S
in reply to: Not Stabilizing on Tapazole #1172261I think if my levels look better on 40mg I won’t have the surgery right away. Or that is what I understood. I am on that dose for one month minimum. My blood will be tested again in a month. I am not allowed to see the endo again for a month, this is a rule here for seeing specialists, and I can’t talk with the surgeon yet. I am confident I will get a good, experienced surgeon.
I go for a bone scan on Thursday to see if calcium deletion is taking its toll at all.
Thanks Alexis and others for all the support! Hugs…
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