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in reply to: Levoxyl Dose Changes with weight gain/menopause? #1175606
Well, nice to know I’m not alone but sorry for all of us that want to stay slim and look decent for our age!
If it’s any comfort, I’ve read over and over that during menopause, it is normal to gain weight and some say that 90 percent of women gain no matter what they do. I think it’s hormone imbalance sans the thyroid disease we have.
When I was severely hyper, I went down to 89 pounds. Now that was horrible. I was afraid I was going to disappear! But now it’s like having an anxiety attack just getting on the scale.
I guess we get older and regardless, we gain weight anyway, but I have cut out so many great things I love like pizza and spaghetti, low mein. Help! I’m living on crap and still that digital is making me very upset.
Today I was placed on a low dose beta-blocker. I’m hoping it will help with the heart racing as this is ruining my exercise routine!
It made me mad when the PA came in and said I look thin. Is she insane? Ugh!
in reply to: Levoxyl Dose Changes with weight gain/menopause? #1175603My FSH is 107.7 and the doctor said I’m definitely in menopause despite Graves.
I have gained 3 pounds and I am very upset. I was a model and even though I’m 54, I want to keep that weight I had before menopause. I have tried everything from cottage cheese to diet ice cream to carrots. I have a bike, jump rope, hula hoop (does keep the waist line!) but cannot lose this weight.
I don’t understand why. I have Graves’ disease and can’t lose weight? Makes no sense.:mad:
You’re cool, Naisly. I’m just trying to get some support here because I don’t have anyone in my so-called family that understands this stuff and I feel very alone.
husband could care less, mother lives in her own little world, and one friend I have, tells me to drink Asparagus juice. She says that helps hyperthyroidism so you see what I’m dealing with.
I come here for support from my own home and behind this keyboard. I have no one who understands this disease and nobody cares.YOU PEOPLE ARE in the same boat I am in, so I feel a good sense of communication with all of you. But at the age of 54, nobody is gonna step on me or I’ll have to run them over. You understand what I’m saying?
I don’t appreciate being scolded like a 2 year old that won’t eat their vegetables. I’m feeling particularly rotten right now and laid in bed most of the day burning up and sweating with a headache, and the tears just kept coming down. I keep wonder what I did to deserve this disease. I have racked my brain and i don’t get it. Christmas is coming. And my father died on Christmas so I have a lot to look forward to. Life sucks and the last thing I need is someone dogging me.
Also wanted to mention, I don’t BeLIEve everything doctors say to me. I have been told many “stories” like acupuncture will take care of hyperthyroidism, menopause, and other crazy diseases like Lupus. I don’t regard myself as an amateur. I think I’m a professional patient. I have SUFFERED FOR 15 years from this disease and mis-diagnosed with Hashimotos, given the sentence of not being able to take ATD’s when hyper because “Hashimotos does not respond to ATD’s.” That’s what another told me. Was he right or wrong? I still don’t know. So what you are saying to me is a bit offensive. I must be honest and right now, I am NOT in a good place. I have been extremely sick since last Thursday.
have a nice day, I know I won’t.
Well, sorry if I offened you, Bobbi, that’s certainly the last thing I wanted to do. However, I do apologize for maybe what “didn’t come out right” in my last post.
However, I have been told (and this doctor was a very young female surgeon that did general surgery) and raved about appendix and how great she was,that was going to yank out my thyroid as she put it.
She was friends with another endo I was seeing in Syracuse NY. I later was told that many surgeons are mis-informed about different things and all they see are $$$$$$$$$$$$$$$$$$$$$$$$$$$ signs. They are in business to “cut” and that’s all they know. So truthfully, how am I supposed to know? I hesitated with her, I was not sure.
This is just the same as plastic surgeons who promise to make you into a movie star and botch it up. Very similar. You have to be careful. Maybe I shouldn’t have used the word “lie?” Maybe “mis-informed?”
This is pretty distressing news to me. I had one surgeon I consulted with tell me that TSI would be destroyed eventually but it would take at least 3 years. She was wrong? Makes me wonder if surgeons just lie to get the business so they can do their surgery?
So if we have a “dead” thyroid in our necks or no thyroid because it is removed surgically, we still have the antibodies? This is beginning to really upset me.
in reply to: FT4 and FT3 question #1175531Cat – sorry I can’t answer your question. I’ve read this whole thread and knowing as much as I do and certainly been to enough doctors, I’ve never seen your situation before. My FT4 is always consistent with my FT3. If one is high, so is the other.
There are so many tricky things that happen with this like a TSH that is hyper and normal FT4 which I have had so many times.
I honestly don’t understand it. Your endo should have an explanation for this. The last thing I was told was not to pay attention to TSH, FT4 or FT3 because the bottom line is the antibodies. That’s really what is causing all our trouble. That is how I was mis-diagnosed for 15 years. Nobody cared to run TSI and TPO. That’s how they finally figured out I had Graves’ disease.
Thanks for the exercise information. I do try to stay hydrated and drink Gatorade. Maybe I should drink more? I have it every morning for breakfast.
It’s a funny coincidence because I remember everything getting worse and going to the blood lab. TSH kept dropping to waaay below 1.0
I was having horrendous heat and couldn’t even stand in the sun for more than 10 minutes without blowing up.
I made my decision to finally get to the bottom of things and they found Graves’ disease
in reply to: FT4 and FT3 question #1175526What causes the body to over-heat while doing any type of exercise or exertion?
I have this happen sometimes and right now, it’s pretty bad. Can’t walk long without feeling hot and winded. Heart races. Is this the broken thermostat that we are speaking of?
I never understand this and the menopausal transition. All the doctors don’t understand it either.
in reply to: FT4 and FT3 question #1175522thanx caro, I would appreciate anything you could find out.
I remember watching Cybil Shepard on a talk show and she spoke of when she went through menopause.
She said “they told me to drink a cold glass of water when I got hot and I GOT HOTTER.”
So instead of it cooling her off, she got hotter. That’s exactly what happens to me at times, although not all the time.
in reply to: FT4 and FT3 question #1175520I hate to think the thermostat is broken. if so, does it stay broken forever?
In my case, menopause has proposed a double “whammy.” Graves’ would have to happen now at this point in my life. I suppose things could be worse. At least I am 54!
Question: sometimes hot flashes (for me) are brought on by cold weather. I am sure this is strange but it has happened. I will get very cold to the point of goose bumps and then start getting very warm. I never hear of this on menopause sites but it happens.
I talked to my neurologist about this and he said “you are just sensitive to climate changes, there is nothing you can do.”
Is this the thyroid or menopause?
any guesses are welcome
Karen
in reply to: FT4 and FT3 question #1175517My doctor told me some people are “poor converters.” If this is the case, sometimes they consider Cytomel.
in reply to: Diet & Graves Disease #1175365The doctors I have now, just think it’s genetic in my case. Father had thyroid cancer, on my mother’s side, they have Hashimotos. He says it’s just manifesting itself in another form inside my body. I imagine I was destined to be this way. Glad my father isn’t here for once in my life. He’d be pretty upset if he knew I had Graves disease and I know he’d feel responsible, but I certainly wouldn’t blame him.
It’s like diabetes. My husband has it, my sister-in-law has it, my father-in-law had it and my husband’s grandmother had it.
Yes and that is why I had to go all the way to Cleveland from upstate NY. We only have 5 endos here and all they know if they know anything, is about diabetes. The one I was seeing, I hold responsible for my mis-diagnosis. He also takes care of my husband’s diabetes, gave him the wrong pills to take and last summer, my husband went into renal failure and he spent a week in the hospital here. That’s when I noticed my TSH started to drop.
Don’t know if it was stress or just coincidence.
in reply to: What causes a bad day? #1175452Thank you, you are very kind.
Some women have an easy time with menopause. I just don’t. My mother didn’t have a hard time, but her hairdresser is 42 and is just as bad as I am at 54!
My mother used to know a woman that kept the bedroom window open when it snowed, because she was so hot during the night. And she did not have thyroid problems, just menopause! LOL! It was snowing in her bedroom and she felt great!!!!
I can’t wait for the snow to accumulate here. I’m going to go make snow angels in the backyard with my dog. It sounds so re-freshing. I keep dreaming about it!
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