[Trisha]

in reply to: What am I in for? #1074332

I loved the fact that I was faster than any one else as well. I also loved walking around in the dead of winter needing nothing more than a sweatshirt. Or at least I thought I did. It was only after surgery and stablizing with synthroid that I realized how sick I had been. Check your pulse rate, you will be shocked! Honestly, I thought I would miss being hyper, but the truth is being well is so much better.

[Trisha]

in reply to: Choosing Thyroidectomy on Purpose #1075739

My endo would not give me a choice. Because I was in my early thirties and could possibly have more children. I had a thyroidectomy. I think the fear was a pregnancy to close to RAI? I had a wonderful surgeon and a relatively quick recovery. My scar is less than most so I have no complaints. He took 95% of the thyroid. My Mom had RAI. It worked. She had a rough time, but she also has fibromyalga and Rhuematoid so not sure what was RAI related. I can tell you I wouldn’t let anyone near my throat with a scalple until I was comfortable with it. I asked a lot of questions, starting with "how many of these have you done?" Good luck with your decision!

[Trisha]

in reply to: Normal At Last! There IS hope! #1074673

Congrats!!!

[Trisha]

in reply to: Looking for stories #1074643

My daughter is 11 and was diagnosed in November. If you want to send me some questions I am sure she would answer them. It might help her to know there are other young people with Graves. I have it, and so does my Mom, but we were diagnosed much later. It is just not the same. I think your film is a GREAT idea. The worst part for her has been activity restriction while she waits for her numbers to come down. She plays sports and she misses them terribly.

[Trisha]

in reply to: Newly Diagnosed & Struggling #1074857

KC,
I am new here as well! My thyroid was removed several years ago. I stuggled with my weight for a long time. One piece of advice I can give you is absolutely take your synthroid the same time EVERY day. I was not able to control my weight until I was very consistant with my dose. It takes a while for things to get under control, but they will get there!

[Trisha]

in reply to: PTU QUESTIONS! #1074763

Her Dr. is aware, if the situation does not worsen this week, we speak again on Friday to determine a course of action. Just wondering if some side affects go away with time. I am worried about RAI at this age, right before puberty.

[Trisha]

in reply to: PTU QUESTIONS! #1074761

My daughter is 11, diagnosed Nov 7. Broke out with hives severe with Methamazol. Now on PTU. After 3 weeks started getting itchty red patches that develop hives when she scratches. I can control this with Clariton. Otherwise doing very well. More labs Thurs. Anyone have hives experience? I have Graves, surgery about 8 years ago and I don’t remember much! My Mom has Graves and had radio ablation 3 years ago. My only sister has Hashi’s, (Talk about a family history!) But this is my child and I would like to avoid RAI at least until after puberty. Has anyone had a drug reaction improve with time and staying on the drug?

Thanks, Trisha

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