[tnapavlu]

in reply to: synthroid vs armour? #1177389

Thank you all for your help, I will continue to weigh the pros and cons of each of these options and discuss them with my new Dr. on Thursday. I am hoping to just get things balanced back out and on the “normal” track again in hopes to keep up with the 3 teenagers in my home! Ok, that sounds good, but maybe not completly possible at my age now lol!

[tnapavlu]

in reply to: Introducing myself! #1177408

Welcome Steph! This is a great place to vent, ask questions, or I sometimes just read what’s going on with other people to know I’m not “crazy” lol! It’s nice to know we are not in this alone and that we have a great support system here amongst each other. Hope to see alot of you, and wish you the best in your road to a normal life again

[tnapavlu]

in reply to: synthroid vs armour? #1177386

@stymie

I haven’t heard anything about the tirosint(sp?) How does it work, and do you like it? How long were you on synthroid and what made you change? I am obviously desperate for anything right now. My biggest down fall with the possiblilty of switching to the Aromour is that most Dr’s seem to be against it and insurance doesn’t like to pay for it. So at that if the Tirosint could be a better option I am definitely willing to check it out also!

[tnapavlu]

in reply to: 5 years “stable” 2 weeks post- od #1177178

@v, I noticed that Gator was possibly allowed to wear contacts to correct her vision before her OD surgery, I haven’t been allowed to wear contacts for 10 years now because of the severity of my TED. I don’t know if this may have any result on the effect on her not getting the double and me getting it but it might?! I do have to tell Gator thanks though, I had read her posts prior to having my OD surgeries and saw that she had numbness and immediatly asked my Dr’s about this and they confirmed that it is a definite possibility. I ended up with it and it sounds like her and mine is almost identical. From eye down to upper lip, nose and cheek area is numb and tingling. If I remember correctly she also had both of her eyes done at the same time, they did mine seperatly starting with the right in Dec. and we just did the left in Feb. I am hoping it will subside soon but I am only 2 1/2 months post on left and have feeling it will be a few more months. If you can live with it though I feel as though it is definitly worth it, as I said before I have had my ups and downs with this process but the thought of being able to wear contacts again, not using all the ointments anymore, and not having people stare all the time is well worth the process!

Hang in there, use the support system and you will get through it!

[tnapavlu]

in reply to: anyone feel like immune down? #1176851

Kimberly,

Unfortunatly, I had a thyroidectomy so I’m just on synthroid. However, can this still have any effect on my WBC, should I still have my Dr check this? I can not believe how bad this is, I too am a complete germaphobe and keep shampooing carpets, scrubbing floors and walls, total OCD. LOL! I am at a complete loss of what else to do…

[tnapavlu]

in reply to: does it get any better #1176825

Rest asssured it does get better. I was diagonosed with graves 6 years ago and am just now doing my od surgeries. I just did the left eye in December and will be going in next Friday for my right eye. I know it all seems like such a long and frustrating process and I won’t lie and say I haven’t shedded a few tears and had my share of anxiety over all of it but it truly does get better. We just need to keep remininding ourselves that it is better than the potential of going blind! Also, I understand that this can be a very frustrating disease at times but that is why we have this wonderful support forum, to help us remember we’re not crazy there are other people experincing the same symptoms and frustrations as us. Hang in there it will get better and the smiles and beautiful eyes will return!!!

Hugs and Best wishes

[tnapavlu]

in reply to: neuro opthomalogist? #1174571

Thank you soooo much Gator and Shirley. I don’t know what I would do without you all and this forum. All of you have been such a huge help and so supportive, I can’t express how much it means to me. Especially on the days you feel like you’re fighting this alone!

Gator, I’m so happy for you and your post op appointment. Sounds like everything went great. Hang in there and recover at your own pace, not your co-workers. Your full recovery is the main priority right now.

Shirley, I love your posts, they are always so informative and supportive. I always look forward to reading them as you are able to explain everything (i.e. the emotions, physical, etc.) aspect of this disease. What would we do without you!

Again, thank you both, and hugs!

[tnapavlu]

in reply to: Quick Orbital Decompression Post-Op Update #1174533

Gator,

Thank you so much for posting the update from your surgery. This helps me a lot, since I am to have my OD done in November. I’m wishing they would just do both eyes at once but unfortunately they said they can only do one at a time.

I hope you recovery starts to go better for you, and the numbness goes away. It, however, sounds like you have an incredible support system. I’m so happy for you, keep us posted!

[tnapavlu]

in reply to: orbital decompression questions #1174379

Thank you so much Gator that helps a lot. I wish you the best of luck on your surgery and I hope for a speedy recovery for you.

I was diagnosed with Grave’s and had a thyroidectomy about 5 years ago. My TEd is also considered moderate, I have always had big eyes, just now they are bulging big eyes! My deductible is also met for this year and we are trying to at least get the OD done now as my premiums start over the 1st of the year. Unfortunatly, there is just not enough time to do it all now.

Definitly, please keep me posted on your progress, as like I said before, I’m excited but scared at the same time. Looking at doing my surgery shortly after the 17th of November.

[tnapavlu]

in reply to: Life after Graves #1173229

dgregory,

I hope this finds you well. I use to live in midwestern KS and fought for years to get diagnosed when I lived there. It wasn’t until I moved to Idaho and had no choice but to have the thyroidectomy when I was diagnosed with Grave’s. Since, it has been almost 6 years and I still have my “good” days and my “bad” days. As others have posted I agree that it seems to be fighting more of the autoimmune disease part of this than the thyroid part. However, we are kind of hit with a double edged sword. We have so many symptoms much like that of someone with ms, also an autoimmune, but we can’t be treated for it like they can. We are treated for the thyroid part but we still get thrown off by heat, cold, stress, sleep, etc. Again, much like those who suffer from ms. It is hard to deal with but we fight on and use each other as support.

I don’t regret the surgery and have to admit I felt 100% better after. I was able to hold a glass of water again, clean my house in one day, simple things that I took for granted before I got extremely sick. Yes, I still have the occasional palpitation, and muscle spasm, or may have a day where I’m exhausted, but that’s a far cry from not even being able to get out of bed to get my kids ready for school!

Being from KS, hang in there with that heat and humidity and drinks lots of water. I now live in CO and it’s a little more tolerable. I hope you keep on a great road of recovery and use this forum, I have used it lots, just to know I’m not crazy and what I’m feeling isn’t in my head. lol Best of luck to you and take care.

[tnapavlu]

in reply to: confused and need help #1172962

Thank you both that helps. I thought I was somewhat correct and it’s good to hear I’m not going crazy! I will start checking into finding an Endo who actually cares, and will listen. Then maybe I won’t have to whine on here…lol. Thanks everyone for listening though and being here for me, you have no idea how much I needed it right now, as people just don’t understand this disease and can portray you as just “lazy” or think it’s all your head.

[tnapavlu]

in reply to: Rituximab #1172923

Please let me know what you do and how it goes. I have severe TED and am looking for any option out there to treat it, but am terrified of the surgery both cost and possible affects. I also noticed you were from Colorado which is perfect cuz if you have good luck I’m going to your DR! lol

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