[Tkiv]

in reply to: graves disease and concentration problems despite medication #1183674

Hi Jill,

I too have had methimazole as well as RAI. The brain fog and concentration have not cleared for me. I was diagnosed about 5 years ago. I dont know if it will ever clear, after this long….I wish and hope that it will. But it has improved.

But like Raspberry said, don’t give up the search. For me – going gluten free, adding yoga and meditation and regular exercise have helped. As well as getting enough sleep. But all have been done with my doctor’s ok. I wish you and your daughter success in this fight. I hope you can get some answers that help her. Take care,
Terry

[Tkiv]

in reply to: Graves and now period of a fib #1183026

Kimberly,
Thank you for this link. I love my yoga class and believe it really helps. Your link is validating and I really appreciate that. I believe it also helps calm and relax the crazy mind as well as help with my heart palpatations. It’s Something I will stick with for my bones as well.

Namaste,
Terry

[Tkiv]

in reply to: Lord I need help #1183012

Hi Jenn419

I felt the same way when I was first diagnosed. It’s hard to feel bad and not know where to turn. This site has helped me in so many ways….especially by just validating my symptoms. And I just found it! I was diagnosed with Graves in 2010 and have not felt myself in a really long tome…but…

I have my Graves Symptom Support strategies….these may not help everyone, but like you said we have to try something!

Book by John Kabat Zinn – Full Catastrophe Living – it is a book that teaches meditation skills and how to “help control the crazy” when nothing/no one can help. I have his CDs as well. It taught me some relaxation techniques that help when I am really feeling anxious. Like I said…may not be for everyone, but worth a try. He’s funny too!

Yoga for Anxiety and Depression with Ira Israel. – my daughter introduced me to this DVD and I had never, ever done yoga before…never, ever wanted to do yoga either…but, this DVD helped me to learn to breath. I can’t do all of the poses, and that is fine with me. Many of them are not difficult (I am 55).
It’s the first DVD I have seen using a guy…again may not be for everyone.

The last subject that I have been struggling with when feeling symptomatic is what to eat. I am still struggling with this one Jenn419, but I am hoping others have ideas…I just end up drinking a lot of water some days.

I wish you the best on this journey, and please if something works for you let us know.

Terry

[Tkiv]

in reply to: I lower my Levo and my TSH drops even MORE! #1182995

Hi Sue,

Oh man, I feel that I may be going through something very similar. I too have been battling a low TSH. Mine was .011 just 7 weeks ago. It hovered between .015 -.011 for the last year. 7 weeks ago we lowered my dose of synthroid from 88mcg to 75 mcg. I felt terrible for the first two weeks. Headaches were the worst. But gradually I began to feel better than before the dose change. I am still having symptoms though (heat intolerance, anxiety).

I see my doc next week and will find out what my TSH is now. My FT3/4 have both been in the normal range, but at this point I still feel unwell. The anxiety is awful and I’m very concerned about my bones. I had RAI in 2011.

I don’t understand this either Sue. Does Graves just flare up?

Hoping to find out if my levels dropped and what to do next week and will be back.

Take Care,
Terry

[Tkiv]

in reply to: Subclinical Hyperactive? #1182992

Thank you Kimberly, I will do that.

One thing I always forget to mention is my digestion. I have a very difficult time with certain foods. But it seems to change on a regular basis. Some days kefir will be fine, and other days I’m in pain. Same is true for certain carbs and fats. I have always wondered if my thyroid affects this. When I change doses, I definitely notice it. I drink a lot of water to help with the discomfort and pain, but I remember AZGravesGuy recommended an autoimmune diet book. Do Graves patients need to follow a more controlled diet.

Thanks Kimberly,

Terry

[Tkiv]

in reply to: Subclinical Hyperactive? #1182990

Hi WWWl,

Thank you very much for your reply. It has been difficult since my numbers are relatively close to normal but I still don’t feel well. Mostly warm all the time very fatigued weepier than normal and terribly anxious. I’ve been trying to figure out why I still feel like I do. I guess I really don’t understand how the Graves antibodies can affect me. After RAI I just expected to be fine, once I started synthroid. With such a small adjustment in my synthroid dose 7 weeks ago and still feeling poorly I was thinking maybe there was something else going on (that’s why I was thinking maybe subclinical hyperthyroid).

When I see my doctor (she is not an endo but I do like her) I’m sure she will want to do a recheck, but I will also ask her about NDT. Is there any other testing you would recommend?

Thank you again WWWl, I am so appreciative of all the information and support available on this site.

Terry

[Tkiv]

in reply to: Graves Hereditary? #1182960

Thank you all for the information and support. I am already amazed by how much information is available on this site that I have not found anywhere else. Especially regarding the emotional changes that can result from this disease.

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