[tinaleonardsamson]

in reply to: newly diagnosed, need advice #1181276

and THANK YOU ALL,

[tinaleonardsamson]

in reply to: newly diagnosed, need advice #1181275

Thanks to each person who responded. All great advice and great to not feel so alone! My endo had me start tapazole right away. along with a betablocker and steroid. I’ve been on the meds for 3 weeks now and ut is rough. Somedays I think the meds are making things worse. butmy blood pressure is stable more often now…and heart rate is less crazy so those are good signs. and I gained a little weight, I’m officially over 100 lbs again, which is great. Some specific questions I have now are:

– my endo wants a 24 hour cortisol test and blood test nect week – 4 weeks after starring meds. does that seem to soon?

– should I ask her to check my liver too? what is that test called?

– I also have Gilberts syndrome – a usually asymptomatic genetic syndrome that affects the liver. anyone else have this too?

[tinaleonardsamson]

in reply to: newly diagnosed, need advice #1181274

Thanks to each person who responded. All great advice and great to not feel so alone! My endo had me start tapazole right away. along with a betablocker and steroid. I’ve been on the meds for 3 weeks now and ut is rough. Somedays I think the meds are making things worse. butmy blood pressure is stable more often now…and heart rate is less crazy so those are good signs. and I gained a little weight, I’m officially over 100 lbs again, which is great. Some specific questions I have now are:

– my endo wants a 24 hour cortisol test and blood test nect week – 4 weeks after starring meds. does that seem to soon?

– should I ask her to check my liver too? what is that test called?

– I also have Gilberts syndrome – a usually asymptomatic genetic syndrome that affects the liver. anyone else have this too?

[tinaleonardsamson]

in reply to: newly diagnosed, need advice #1181270

Thank you so much for sharing your experiences. I’m really grateful for this forum. It does feel overwhelming at times but just knowing what’s wrong and that I’m not losing it helps a lot! Reading so many similar experiences is like validation that my symptoms are real and its not just in my head like drs seemed to think.

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