[terppsi]

in reply to: On ATD two years-plus? #1183744

Hi flora,

I also have been on ATDs for over 2 years,with constant dose fluctuation, but I finally seem to have hit a sweet spot a few weeks ago. I may even start reducing the dose in 1,5 months.
I still feel very tired, though, my endo says it could be because my FT4 and TSH havbe been all over the place for such a long time, it may take time for my body to get back to normal. But she will check my cortisol levels on our next appointment.
So hang on in there!

Virginia

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in reply to: Methimazole …how long can you take it? #1183615

Hi Alisa,

My stepmother has been on methimazole for 16 years now, no side effects so far. She takes 1/3rd of a tablet every 3 days, so it is a very low dose. Her endo wanted her to have a TT but her primary care physician told her not to worry, but I am not sure if she has Graves or only nodules. She could not remember ( so unlike me, who wants to know everything…)

[terppsi]

in reply to: Just needed to vent #1183381

Hi Kimberly, I am finally regaining weight. I was considering scheduling a appointment with my endo, but this week I was happy because I regained 2 kg ( one of my colleagues says I am the only woman who is happy because she has gained weight). I knew I had to wait around 4 weeks after does change to go for new labs and it has been 4 weeks this week. I still get tired very easily but at least there is progress

[terppsi]

in reply to: Just needed to vent #1183378

I wanted for a long time to thank you both for your support, but tme just flies. I wanted to gi ve you a quick update. Since december I have been trying to readjust my doseage. my FT4 went form 3.5 (normal range 0.7-1.76) in december to 2.5, then 2.17 and now I guess it is getting closer to normal range because since last week I have moments when I feel almost normal, which at this point actually feels weird, altuough I celebrate it everyday. But I am still loosing weight, for the first time in my life I feel unconfortable with my body, and that never happened when I was fat.
I managed to maintain the weight when I took holidays but as soon as I went back to work I started loosing weight again. Plus I developped diabetes so I cannot stuff myself. Wondering wether to ask for a sick leave but just the prospect of being cooked up at home by myself…
I am seriously thinking of TT, since I can’t have RAi (big goiter, Trabs 54…), I am scared of loosing my singing voice but I guess the longer I leave it, the higher the risk.

[terppsi]

in reply to: Alternating dosing of Methimazole? #1182788

I am on an alternating dosage, as 2.5 mg per day is not enough and at 5 mg per day I went completely hypo (TSH=54., so now I take 2.5 mg mondays, tuesdays, thursdays and fridays and 5mg wednesdays, saturdays and sundays.
I think I feel slightly better on the days I take the 5 mg, but in general I don’t feel much diference.

[terppsi]

in reply to: Coping with Graves #1182687

@Kimberly Thanks, it does help a bit. What the surgeon had told me was that some people have more than one laryngeal nerve, and in those cases there is a higher possibility of nerve damage. And it was impossible to know before cutting you open.

Virginia

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in reply to: Coping with Graves #1182685

Hi Rene,

I recognized myself when I read your post, apart from the diagnosis nightmare. I was diagnosed last july, as I was suffering from very fast heart rate and weight loss. I was trying to loose weight so I did not notice at first ir was too much, not until people started looking at me as if I was going to die.
Everybody told me I would feel better after starting the meds but guess what? One year later I am still on a rollercoaster. I managed to get good values of FT4 in march and had shoulder surgery in april and the palpitations and fast heart rate restarted after that. We readjusted my meds (2,5mg methimazole 4 days a week and 5 mg 3 days a week) and since last week I feel the exhaustion again. Just to be takes too much energy.
I have been considering TT as my thyroid is very swollen and my endo does not advise RAI in my case. But the surgeon scared me away as he mentioned I might never be able to sing again, and he gave me the example of Julie Andrews. I know it is only a one percent chance, but singing is one of the things I enjoy the most in my life so I am having a hard time making a decision.

Virginia

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in reply to: Maximum amount of time you can be on meds? #1181764

Hi herring,

my stepmother has been on methimazole for the last 15 years without any complications, but then she only takes 1/4 pill twice a week, I am not sure this has an influence.

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