[Teri_Odegaard]

in reply to: How Did Everyone know there was something Critically wrong with their health? #1181123

I didn’t know. Had an appointment with doc for cortisone in elbow. He came in, I stood up, got dizzier than a spinning top, saw things going black. said I had vertigo. called a friend who lived close by to come get me. stayed at his place for couple a days. clinic called to see how I was doing and they sent ambulance as I was havin stroke symptoms on right side of body. last thing er doc did was test for gd. and bingo … my life changed forever. it has been over 3 yrs since diagnosed and there are no answers for many symptoms I have. normal for me is sometimes a couple of seconds to the next, sometimes not so fast.

[Teri_Odegaard]

in reply to: Muscle Cramps #1181708

Hi all, New to the forum. Just wanted to say that when my T3, T4 and TSH were out of whack I got cramps in my calfs so bad I would end up crying. Never heard of the medications you are taking or I just can’t remember (have a problem with that since diagnosed). I take 15mg of methimazole a week (Monday, Wednesday, Friday), did not always be that way.

[Teri_Odegaard]

in reply to: Severe memory issues #1174393

Thanks. With GD not being common it is difficult to explain to people what it is and the symptoms. I know there is a wide range of symptoms and since everyone is different GD affects everyone differently. My doctor says to think about a “somatoform disorder”. It’s where you have symptoms and there is no known medical cause for them. Really now it was like here is a list of possible symptoms with GD (there is actually over 60 different ones) and now your telling me I have what? I also do know that one symptom can be “neurological issues” and specialist I have seen know this and tell me that GD is not the cause. I just take one day at a time and accept what I am able to do (some days not much).

[Teri_Odegaard]

in reply to: Severe memory issues #1174391

Hi. I can understand the memory issues. I was diagnosed with GD with hyperthyroidism in 2010. I started college March 2009 and finally graduated this October. It was difficult, but I wanted it so bad I kept going. I don’t know if you do college online or not, but your college should have something to make accomodations. I did mine online. They had no idea what GD was, so after two years and with only 4 months to graduate I gave up. That doesn’t mean you should. GD is not that common, only 2% of the population has it. I think it’s time those medical professionals should wake up and learn more about it.

Good luck with school.

[Teri_Odegaard]

in reply to: Severe memory issues #1174389

I understand where you are coming from. I recently graduated from college. It wasn’t the easiest thing I ever did since I was diagnosed with GD. To this day I still have problems with my memory (doesn’t matter any tricks or notes don’t help), thinking processes, and concentrating. The specialist I have seen say there is “nothing” wrong with me. My provider says there is, but he can only go so far. I’m so tired of the “lack” of answers it stinks. I have found out more online than all the specialists I have seen. Even when I take the printed version to them they have no idea what I am talking about.

Just how do you go about convincing a “specialist” you have these symptoms when even “they” can’t find anything?

[Teri_Odegaard]

in reply to: Graves? #1174723

I was diagnosed with Graves’ Disease with Hyperthyroidism in June 2010. Yes, the symptoms are very real. I went through a round of specialist, endocrine, neurology twice, and hearing . It was confirmed that I have Graves’ with the endocronologist; however, for my symptoms I was suppose to see my regular provider. I have had 6 MRI’s since my diagnosis. There is no trauma or tumors associated with my brain. This year I went to a hearing specialist. I have hearing in the “normal” range — so why do I continuesly have this high pitched buzzing sound in my ears — I don’t know.

I have been looking for answers since I was diagnosed, haven’t found any. When I was first diagnosed I had all the symptoms of a stroke, but on the right side. No problems with my brain. At the ER checking my thyroid levels was the last thing they did — therefore diagnosed. I was taking around 8 5mg of methamazole at least 5 weeks daily before my levels started to go down. In the first month I couldn’t think, remember, or concentrate worth a darn. Driving was out. I was walking with a cane and when it came to talking that was so difficult that I would get frustrated because the words were there in my head, but the sound came out stuttering and slow.

My provider let me have access to a web site for physicians as a guest for 30 days. This web site had a lot of information on Graves’ and I printed it all. Here’s one for you — the two least common symptoms of Graves’ are vertigo and tennetis; but those were the two my provider used when I was diagnosed. He told me that I might have a “sonodoform disorder”. I did a short question/answer thing and I answered more no’s then yes’, which discounted that one.

When I was doing the research I found that Graves’ can be onset by stress as a factor. It can also cause neurological problems. What I would like to know is — if the information is there for the medical profession why do I know more than they do?

My provider does listen to me and has tried very hard to help me find answers. I am still looking and so is he, but with no income right now I am at a stand still.

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