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  • TedyLeo
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    Post count: 5

    Thank you Beach for your response and comments.

    It did take me four months to go hypo after RAI so hopefully you will shortly and they will get you on synthroid to make you feel better.

    As for weight issues, don’t even start me on that story. LOL! I was told by my endo that I would probably end up about 20-30 lbs overweight for the rest of my life. That shocked me and it hasn’t been true though I have to exercise and watch my diet very diligently to ensure it doesn’t happen.

    Best of luck on your recovery!

    TedyLeo
    Participant
    Post count: 5

    Thank you Alexis for your response.

    I am actually working with my Dr. and see him on an ongoing basis for other issues (kidney donation to my brother requires that I see him on a regular basis).

    The conflict has always been getting the synthroid dosage correct. I have yet to go six months without it being changed. Others that I speak to go on one dosage and are on the same dosage most of their life.

    Good luck with your recovery!

    TedyLeo
    Participant
    Post count: 5

    Thanks everyone for the input and sharing of your experience.

    My Dr. does not have a problem with keeping the TSH low, as he says it is not “too low” but is slightly out of lab ranges as is the T4 slightly above range. Keeping it at the range it is right now I have no symptoms of hyper or hypo. When he changes the synthroid dosage down to the next level I have full blown hypo issues.

    So for the next six months we are keeping the synthroid dosage where it is though he is wondering if I should be referred back to my endo for consultation on if it is acceptable to continue on after that. As it takes up to a year to get into see the endo, as I really don’t have an issues it wouldn’t be urgent, I don’t want him to put me hypo during this time before we get the blessing from the endo to continue on with me being “slightly hyper” long term.

    I have had all the heart testing and bone test done and everything is fine.

    From my readings I do see that it is not unusual after you have been treated with RAI to require a synthroid dosage that makes you slightly hyper according to the lab reports to feel “normal”.

    I am just wondering is there anyone else out there who requires to be kept slightly hyper to be symptom free and if so have they been doing it long term?

    Thanks!

    TedyLeo
    Participant
    Post count: 5

    Sorry I mixed the T4 and TSH numbers when typing. I have now corrected it so not to confuse others.

    Thanks Kim for noticing this error and correcting it!:)

    I am just looking for anyone’s experience who might be running “hyper” by lab reports and if so for how long?

    Looking forward for others to share their stories.

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