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Boomer – I have had a different reaction…last year my vitiligo started to spread to my wrists (it has previously been stable), I went to my doctor because I “knew” something was going on to kick up my immune response…it was graves. However, I have the “wart from hell” under a nail that doctors have tried to get rid of for 14+ years, and it has almost disappeared…
Our immune system is a crazy thing. I have three immune diseases and hope this is it…wish there was a way to “fix” an incompetent one…maybe some day:)
in reply to: My total thyroidectomy journal #1178839Thanks for the update – curious how labs look as they relate to your energy level…I do think that after putting your body through stress of a surgery it will take time to get back to “normal”.
Looking forward to hearing what you think of the neck gaiters vs zink…hadn’t thought about the sun after surgery and with the sun here in CO it is an issue!
in reply to: Gabe’s Total Thyroidectomy Journal – 5/31/13 #1179614Hi Karen;
Sitting in our apartment (rental) in Florence and had some time to kill before our favorite restaurant opens (not until 8pm!), and read your tt journey…so glad to hear how we’ll it went – I have mine the Tuesday after we return from Italy.Curious, did you purchase any additional dressings for your incision? Anything I should have on-hand when I get home? – besides Popsicles:)
Do you cover the incision when outside?
Thanks so much for posting your journey!
Talleyin reply to: Helpful advice is appreciated! #1179491I agree, talk to your PCP and take all of your symptoms to him/her – I like the idea of writing it all down. Remember with one autoimmune disease, there might be more – the symptoms you are experiencing might not be related to your thyroid condition. This is my third autoimmune disease – seemed to be diagnosed with one every 15 years…
in reply to: Just for Fun – The “Off Topic” Thread! #1177856Would love some book recommendations for the flight to/from Italy…
Two good books I recently read were:
The Language of Flowers, Diffenbaugh, Vanessa
The Art of Hearing Heartbeats, Jan-Philipp SendkerWe have three cats – two are Savannah cats – the male, Turley, is an F3 and the female, Quintessa an F2; and we have an F2 Geoffroy cat – Ramey…all of our cats are named after wineries:)
I love our cats, but would love a dog…grew up with dogs and miss them, but my husband says they are too much responsibility…true, we can go away for the day or even a night without needing to worry about them, but I told him once the kids are gone (and a cat or two), I’m getting a dog:)
Never thought of a turtle as a pet…came across a few snapping turtles in NJ when we lived by the river.
in reply to: A Cyclist’s Two Days until TT #1179311Hi there;
I’ll be thinking of you tomorrow – I am sure your surgery will go well. I also live in the Denver area and a good friend of mine had her thyroid removed a few months ago (cancer) and the surgery and recovery went perfect.
I, like you, continue to hope my Graves will go into remission – seems as though my other diseases seem to do it so I continue to hope this will too…wishful thinking on my part, but since it has only been a year for me I’m not ready to take further steps yet.
We moved here from NJ – my husband was in 1 WTC on 9.11 – I couldn’t live there anymore…the worry I felt daily after the attack was debilitating. Life here is wonderful – seems to be a much healthier place to live for our family:) I wish you the best with the ptsd – that was an awful time for those of us back east as well as across the country.
Try to keep your thoughts positive for tomorrow – I believe this sounds like the “right” move for you at this time in your life. Focus on recovery and getting back out on your bike – the weather is, finally, beautiful!
Caymus
in reply to: Wish me luck-surgery Friday! #1179075thinking and praying for you today – i hope the surgery went well and that there is no cancer.
in reply to: Hair loss and muscle cramping/spasms #1179002I am so sorry to hear about the latest endo!
Why is it so hard to find a good doctor?? The first one I saw was awful – I knew more than she did (and thats saying A LOT), I like the second one – except for his most recent email (think he’s more worried about himself than me)…
When I tried to get appointments with the “highly” recommended doctors (two of them), I was told their practice is full and they wouldn’t take my name.
I’m at the point that I wonder if my PCP would just be willing to monitor my levels…
in reply to: doctor finally called – mass below thyroid #1178964Thank you all!
in reply to: Beta Blockers and Exercise? #1178906I assume I will be in the minority here, but I never stopped working out. I was dx with Graves in July/August of 2012 and I am on Propranolol. I work out 6-7 days a week – elliptical, treadmill and free weights. I listen to my body and workout as hard as I feel I can, but I work out most every day.
My doctor did not say anything about not working out – and I did tell him that I work out 6-7 days/week.in reply to: cold red wrinkled fingers, small blisters #1178895have you looked into Raynauds Syndrome? are you sensitive to cold?
I haven’t heard that as a sx to Graves tx – look up Raynauds – sounds like it…
in reply to: abnormal CT scan – thyroid?? #1178887Thanks much:)
I will see the radiologist Monday and get another CT scan and hope it shows nothing of importance.
Again, I think I just need to “talk” about it…can’t talk at home with my husband because I don’t want the kids to hear and don’t really want to tell my friends since it may be nothing.
Going to a cinco de mayo party tonight – that should get my mind off things;)
Thanks again!
in reply to: Eyes not bulging but eye problems nonetheless #1175901For the past year I have been complaining about eye sensitivity, redness, dry, sore and tired eyes. I have a feeling it is related to the Graves. My eye doc said my eyes are fine – I am looking for an opthamologist in the area that deals with Graves patients but can’t locate one through Google…I thought I would try one that is highly recommended through our local magazine – I have the phone numbers on my computer and, when I get around to it, thought I would start calling and ask the receptionist if they deal with Graves…I have a feeling that my eye doctor that I see for contacts really doesn’t have a clue.
I suppose, even if there is no eye involvement, it will be good to get a baseline done with a “good” doctor.
Keep us informed of how this goes….I am particularly interested and if you see/feel success with this approach I’d love to know…
in reply to: Diet & Graves Disease #1175363cmac wrote:This question of diet and GD is something I have wondered about. While it may be completely coincidental, the onset of GD occurred at exactly the only time in my life when I have been dieting. Around last Christmas, i decided I should pay attention to my hypertension or prehypertension. Although I was healthy as a horse and almost never sick a day in my life, my bp was stubbornly around or above 140/90. I figured I would try and lower it naturally through diet, rather than going on lipitor, like everyone else. So I cut out my normal meat and potatoes supper (I did not change my continental breakfast or sandwich lunch) and began eating rice or oatmeal, some celery and a vegetable for supper, instead of a chicken breast or pork chop, baked potato and veggie. It worked marvelously, I started losing weight, even though I wasn’t heavy, I figured this would lower the bp naturally. Around Easter, I began feeling less healthy. I quit the diet and went back. But I still lost weight, eventually going from 190 to 150, also developed an excessive thirst and physical weakness. By July, I got diagnosed with GD. I am on the methimazole and also a beta blocker. I have regained 25 lbs and feel great, although my labs from early October aren’t normal. Getting new labs and going to see the Endo just before Christmas. I am not claiming this is proof of anything, but the only time in my life I have gotten sick was the time I tried to switch to an allegedly healthier diet. Maybe a coincidence, who knows? Don’t really care as long as I can remain healthy.That’s weird since the same happened to me…I realize that you either have the antibodies to Graves or you don’t, but maybe the diet can “trigger” it?
My Graves also started after a diet – I started Jenny Craig in February to loose 15 lbs that I have slowly gained over the past 20 years…anyway, I lost the weight quite easily, went to Honduras and ate like a pig and lost more – more than I had wanted so I quit JC after the trip, lost more weight and was then dx with Graves…so maybe the “stress” on my body with the weight loss (although slow and steady) triggered the Graves?I have also just been dx with low vitamin D – it has been checked over the past 10 years (due to other diseases) and has never been low.
Interesting.
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