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  • suzzie
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    Hi,im new to computers and to forums,so escuse any misstakes.I have had TED now for at least five years that i know of.I had all my thyroid out two and a half years ago,i had OD on one eye twelve months ago and the other eye was done nine months ago.My eyes look fab now,just waiting for cosmetic surgery (in about eight weeks).Having lid retraction corrected,fat removal and loose skin removed.No regrets so far,it has been a scary process but worth it.I personally have not been out because of the way i looked(still havent yet).I lost all my self confidence because of a few cruel words that were said to me and have suffered bouts of depression throughout my illness.Im very lucky, living in the UK all my treatment has been free on the NHS.One less thing to stress about.Im glad i had OD.I have started to gain some self confidence(even having computer lessons).Its great to have a support group on the subject.The only problem i have had after OD is double vission.At first it was realy scary,had panic attacks when had to go anywhere(crossing roads were the worst thing to cope with)but things have calmed down now.Im not having a opp for the double vission as it is only when i look to the extreem left or right now ,and i can cope with that.I had my photo taken the other day,the first one in five years.(feeling happy)there is a light at the end of the tunnel.Glad you have the courage to go out,good on you.Hope things go ok for you.

    suzzie
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    Post count: 2

    Hi im new to computers,dont realy know my way around the keyboard so,escuse any mistakes.Anyway,i had all my thyroid out about two and a half years ago after being over active.it took along time to get my medication right and after going into hospital about five times to have the opp,it finally got done.It took a while to get my medication right (again)but now i am getting better all the time.The scar is not realy noticeable,there isnt any change to my voice.The consultant advised me to have the opp,he said it would help to supress the thyroid eye desease,but it didnt.I have gone on to have two wall orbital decompression in each eye.I am due to have cosmetic surgery in about eight weeks.I hope you are doing ok.

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