[Suze]

in reply to: Whether to have a thyroidectomy #1184720

GoodfriendJen,

Apologies for the delayed response. Thanks so much for sharing. You are quite lucky if you can remain on such low doses of MMI. I used to be able to do that, but not for some years now. They say those who can keep on low doses may be able to maintain at that. As for me, I am going for another opinion tomorrow.

Congrats on having what sounds like a great family.

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184717

Liz,

So are you saying that with a TT, I have a better chance of the eye remission?

Thx

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184715

This latest round was really helpful. Thank you Liz1967, emmtee, Kimberly, and SNelson. I’m glad I found this Forum! And it seems we helped MsMamaKat as well. I’m glad this benefited MsMama – good luck to your son on his surgery! I will be interested to hear how it goes if you post about it. I am also glad to hear that at least one person, doesn’t wait too long after taking Synthroid in the morning to consume something. It would have been disconcerting to learn about this late in the game or after the fact. Now I have time to factor this and the other things you all posted about into the equation in considering my options and the timing. I will let you know what I decide to do, but it may take a few weeks. I am tentatively scheduled for surgery in late October, but have not fully decided whether to take the plunge yet. I’ll check back to reread this or other posts.

Once again, many thanks!!

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184709

Wow – thank you emmtee and AzGravesGuy for these responses. I also read the chain that GravesGuy forwarded. Thanks for that. Everyone’s responses are very informative but have also created some additional questions which I will pose to my doctor. I’ll list them here in case anyone is able to respond:

-Re recovery time from a TT, I was informed up to 2 weeks, but did not count additional time for medicine regulation. How long after surgery can I expect to be in a condition to start a new professional appointment?

-I have not yet been told not to have surgery while my eye disease is prevalent. I thought that was the thinking for RAI only. My eye dr. did say that infusions of steroids are an option for RAI, but I prefer surgery. I wonder if TED will cause me to delay. My eye dr who specializes in TED did not mention that.

-I read in Liz’s response below that you have to wait an hour or so after Synthroid in the morning to have breakfast. Is this the only way to work this?? I hope there are other options.

-A few people mention weight gain while they have Graves disease. My experience has been the complete opposite which I thought was standard. I am hoping that I can keep my diet the same after surgery and not experience significant weight gain. I hear mixed things about that.

Thanks all. Once again, this information is invaluable!

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184706

Thank you Liz and scanders. I appreciate your responses!! If anyone else has their own experiences and can share, I would deeply appreciate it.

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