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in reply to: PTU? #1069815

You’re so RIGHT Lakeview…Mamabear has it RIGHT and THANKFULLY she continues to reminds us that lag behind with this monstrous disease. I’m going right now to SLOWWWWWWWWWWWWW DOWNNNNNNNNNNNNNNN…..per Mamabear!!

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in reply to: A Poem For You And For Me #1069706

THANK YOU ABIGAIL…It’s JUST WHAT I NEEDED TO READ TODAY!! Thanks for sharing with us!!

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in reply to: Profession? Stress? Help? #1069712

THANKS Hyperm & Susan!! To Hyperm, I AM in the US. You’re BOTH absolutely RIGHT in that life is NOT a rehearsal and this is a dream I pursued after my son was grown & left the house and it’s one I WILL HAVE!! I guess that I wrote my post out of FEAR after my appointment with the college. I’ve heard a saying about fear, in that, IT"S NOT "REALITY" (can’t remember how it goes, guess it’s GD (memory issues too)! ” title=”Wink” /> ) All I can do is take care of myself & prepare to enter…let things fall the way they are suppose to and make my dream a reality. Although I will have GD the rest of my life, I WILL NOT BE in my current state FOREVER, YOU’RE BOTH ABSOLUTELY CORRECT!! Like MamaBear says…EEE! THANKS for responding and giving me what I needed today, encouragement, educate & empower!!

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in reply to: Eye Disease #1069717

Hello djay1…The reason I will be having surgery is to "realign" my eyes. My right eye superior rectus muscle is 3x the size of the left eye and therefore I have double vision as a result of the enlarged eye muscle. I have bags every morning from the fluid retention, but I had no idea that surgery would help with that condition as well. I hope and feel confident that a facilitator for this site will inform both of us if surgery does help the fluid condition around the eyes. I’m not ready for surgery as my measurements are changing each month and my specialist will not perform it until I have 6 mos. of consistent numbers.

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in reply to: Thats when you know how good this site really is #1069831

I AGREE with you Hyperm!! Thanks to everyone that facilitates this site…may we always be here to support one another!!

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in reply to: Oh dear friends….you won’t like me when I’m angry! lol #1069739

Hyperm…I can’t stop laughing… I needed to read your humor tonight, thanks!

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in reply to: PTU? #1069813

Thanks so much Emily, I appreciate it!! It’s never been in my vocabulary to say "NO" til GD !! ( And, I get annoyed by saying NO too!!) I’m learning to add it slowly to my vocabulary and will give myself time to make the decision of meds vs. surgery. It’s not an easy decision to come to in any situation but I’m one to exhaust all my resources with the meds and research first b/f I consider surgery…it’s just me with a sick, sick thyroid…ARGH!! ” title=”Sad” />

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in reply to: PTU? #1069811

Oh Mamabear…I sat & read your post, along with all the other posts and realize how truly grateful I am to have all of you. Of course, while reading your posts, my emotions came up through my throat and the tears started to flow again as I read every word you wrote. You’re right, in that I ask so many times, "why me?" I think Ski has it right when she says this disease picks the strongest people to attack and I can say that I’m so type "A" like so many with GD. I just don’t know when to stop, when to stop multitasking, when to take time for me and you made me realize, after reading your post, THAT’S SO IMPORTANT to healing myself. I’ve done a lot of research & my Endo dr. actually gave me a low-iodine diet to follow for nutrition to help with the meds. I just get so frustrated when I’m trying to do everything I can, my dr. is doing everything he can and yet, I sit here writing this post while having a hot flash with the double vision to boot. THANK YOU too for my HUG. My Endo dr. just said yesterday that sometimes, with this disease, this is all we need from someone. I’m blessed, in that I have a wonderful boss that has researched this disease after my diagnosis and has taken an interest in helping me heal. She actually told me yesterday that she wanted me to ask the dr. what she could do to help me. Through this disease, we’ve found a deepened friendship that we might now have found in a boss/employee relationship. I laugh with her and tell her that I’ve actually given her a new bullet for her resume, "Working with the disabled!" I can’t tell you how many times she’s seen me cry, she’s closed her door, gave me a hug and told me everything was going to be okay…one day she knew I was tired and let me lay my head down on her desk, instead of driving home, and let me sleep til I woke up. I don’t know of anyone on this site that has had the same experience I’ve had in the work world. All I’ve ever read is how many people have lost their jobs as a result of this disease so I’m very blessed. I just want to THANK YOU for helping me focus today, sending me a life line to pull me back where I belong and to know, there’s always tomorrow.

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in reply to: PTU? #1069809

Thanks Cathy…Last night I spent a few hrs. researching thyroid surgery and decided that if my Endo dr. can’t get me "right" on the Tapazole in the next 3 wks. with his plan, I’m going to ask for a second opinion. I’ve already given too many other organs to science, they just can’t have my thyroid too! I like my Endo and he said yesterday for me to give him a chance…my Graves dr. says it takes a while sometimes, but I’m just frustrated. I can say though, after taking 3 addl. doses of my medicine since yesterday, I’m starting to feel better…at least I’m not crying every minute over nothing!! ” title=”Wink” /> Thanks for your support and for being here.

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in reply to: PTU? #1069807

Thanks so much for your input ewmb!! He explained that RAI is not an option for me b/c I have TED along with the GD. I’ll research the "thyroid surgery" to become better educated on my options. I’m going through so many emotions right now and would prefer to keep my thyroid, if possible. What I do know is that I can’t live with these symptoms much longer…when I’m HYPER, all I do is cry, cry, cry and don’t understand why, why, why…except the hormones are in overabundance, is this correct? I’m so hoping that the Tapazole will do it’s job QUICKLY!! Thanks again for being here!!

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in reply to: PTU? #1069805

Just got back from the Endo dr. & he’s increased my Tapazole, 4x the dosage I’ve been taken b/c I’m back in HYPERthyroidism & he’ll see me back in 3 wks. My TSH was 0.02 (low) & my T4 was 1.7 (normal).

He "recommended" a thyroidectomy and said that this would ELIMINATE how horrible I’m feeling right now. I’m "considering" this option, although I don’t know enough about having it removed to make an educated decision. I searched thyroidectomy on this site and didn’t see anything. I’m hoping that the increased Tapazole will help me immediately, but it seems that I’ll be fighting this beast of a disease the rest of my life so the thyroidectomy is an option I’ve been given. Can ANYONE tell me if the thyroidectomy will KILL GD permanently and what issues I’ll face as a result of having my thyroid removed. I truly like all my organs and would like to keep my thyroid, but I hate it fights me every day. Suggestions, recommendations, any research you’ve done is VERY MUCH WELCOMED!! Thanks a ton!!

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in reply to: PTU? #1069804

THANK YOU so much ewmb for letting me know what can be expected!! I’ve never lost the ability yet to stand up, but close to it. I didn’t realize how disabilitating this disease can be until recently. Last night I couldn’t roll over in bed and it scared me so bad. Off to my Endo appt. now. Will report back what happens!! Thanks again everyone!!

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in reply to: PTU? #1069802

THANKS ALL for the information!! I do have my Endo appt. this afternoon and he just has to do something for me. My muscles ached so bad last night that I couldn’t turn over in bed. Most days I feel like a 90 yr. old woman (an unhealthy one…I know some that are healthier than me at my age!) but this was extreme last night for me so I’m going to see what he does today. Along with this symptom, I seem to have every one listed for GD in the past wk. I don’t know how much more of this disease I can endure…I HATE IT!! (just getting my frustrations out!)

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in reply to: Mood Issues #1069892

Hello Hyperm…THANKS for recognizing my post b/c I’m NOT the person I used to be and I don’t know if I’ll ever know her again. I truly believe she moved out of this house almost a yr. ago with this dx. Even when my levels become "normal" to my endo dr., this monster has changed me permanently. When my friends ask me how I feel, all I can say to them is, "I got up this morning, put one foot in front of the other, and here I am". It is so sad…at least you make dinner and do the dishes. I order out, bring it home and eat on paper plates most nights…that’s the TRUTH.

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in reply to: Mood Issues #1069889

Hang in there Cruizer…I commend you on the fact that you post here for support that we all can give you. I could only WISH that my husband was interested enough in this monstrous disease to find out more about my symptoms and who I am now, since my diagnosis. I can tell you that I am like Dr. Jekyl & Mr. Hyde with my mood swings, etc. and it has truly taken a strain on my marriage too. Realize your husband has other wonderful qualities and hide when you need to from this disease. I tell my husband every day, "I’m not the person I used to be"…it so sad too. Let us know your frustrations, we’re here for you!! I know your husband is very grateful for you, it’s rough on everyone surrounding us when we become someone we don’t like b/c of this disease.

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