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in reply to: Just for Fun – The “Off Topic” Thread! #1177857
I just read THE AGE OF MIRACLES. And I loved it. I’m not sure who is by though. I will check and get back to you.
Diane
in reply to: Helpful advice is appreciated! #1179487Hi,
Just wanted to chime in, I had some severe nausea when my endo put me on generic levothyroxine. It turns out there is lactose in Levo for a filler and I am lactose intolerant. You might want to check out what the fillers are in your med, as it might be something in there that doesn’t agree with you.
My new endo switched me to TIROSINT and I’m doing much better. Tirosint only has the thyroid hormone water and glycerin.
Hope you’re feeling better soon!
Diane
in reply to: “Be patient” you’ll get better #1179472Hi!
I hope you’re feeling better today, and yes I would ask your dr to check your labs and maybe your meds need adjusting.
Idk much about ATDs cuz I was ever on them, but I just wanted to send your big cyber hug, and tell you that things will get better. It just takes some time.
Diane
Hi Caro!
You know your body and what is best for you. Do what you think is best. Many people here are on ATDs long term with no issues. Only you can be your own advocate. Speak up to him and tell him what you want. Otherwise, IMO I would find a new endo.
Hindsite is 20/20. You don’t want to look back on this and say shoulda woulda coulda. I wish I had been more of an advocate for myself.
Good luck to you and whatever revision you decide to make and big hugs.
Diane
in reply to: Do I need a Psychiatrist too? #1179432I agree with sue.
No need to leave. Everyone says things they regret. You should hear some of the things that fly from my mouth!! Lol. Your apology was very gracious indeed. I would hate for you to leave … We all need a good support system in our lives. People to understand us when we’re at our worst.
Can’t we all forgive and forget?
I know I can..
Diane
in reply to: Anti inflammatory diet #1178790Just wanted to give an update.
I have been doing the diet for about 2 weeks now.
My diet is consisting of no gluten, dairy, or soy. Little or no red meats. Lots of veggies with the exception of potatoes. Some fruits. Lots of chicken and turkey.
The main thing I have noticed is my eyes. My eyes do not burn and hurt anymore. I have not had to use my eye drops much at all. I used to wake up in the morning with red eyes, all swollen. Now, nothing. No redness, no burning.
Now I’m not saying that my eyes are 100% back to normal, but they are greatly improved. I don’t know if its the diet or not, but its the only thing I’ve changed recently.
Diane
in reply to: Cyclist post-TT #1179463Thank you for sharing your story with us!! And glad everything went well.
Good luck on your recovery! Rest up and let us know how it’s going.
Big hugs!
Diane
in reply to: So what was your Graves story…. #1179284Butter999
I’m so sorry for your loss, and thank you for sharing yours and your wife’s story. In helping us here, you are memorializing your wife and allowing us to learn your experience. Thank you.
My story: I was so hot all the time. I thought I was in early menopause. When to gyne, and he suggested to test my thyroid levels as well as my hormone levels. Turns out I was hyper. Made an appt to see an endo. Mind you he was recommended by a distant family member who is a nurse, so I made an appt.
Went in to see him, he told me hyper could be caused by thyroiditis, Graves’ disease, and hashimotos. I asked if he was going to test me for all those and he said yes. Also wanted me to get the uptake scan done. I said ok and he sent me on my way for bloodwork.
Did the uptake and the nurse called to let me know “yep you’re hyperthyroid alright”
No mention of Graves’ disease or what that meant for my health.
Did the RAI IN September. Went hypo in November an started on 88mcg of levothyroxine. Never felt good on this generic drug and requested my labs from my endo to start keeping a file on my journey. I received my paperwork by fax and was absolutely dumbfounded when I saw the diagnosis of Graves’ disease. I made all my decisions for treatment based on the fact that I was just hyperthyroid. I called the endo and he wouldn’t even speak to me. The nurse told me that he did tell me I had graves, that by telling me I was hyper it was the same as if she told me I had graves.
It took me some time to come to terms with this on my own, find a new endo from new recommendations and find this site. It literally has been a godsend and I’m thankful I stumbled across it.
Thank you to everyone here for sharing your stories. It makes me feel so much less alone..
Dianein reply to: surgery to remove mass and maybe thyroid #1179448Hi,
Just wanted to wish you the bet of luck in whatever you decide to do. I hope your surgery goes well and there is no sign of cancer. I will keep you in my prayers.
Big hugs.
Diane
Hi Barbra,
I too was diagnosed after taking care of my mother for 10 years with lupus, then my father was in a car accident and ended up taking care of him for 3 years due to a traumatic brain injury. This is just MHO, but it seems when the stress died down in my life is when I got sick.
I think my body was so used to the stress induced state, that it freaked out when it was gone.
Just my 2 cents…
I wish you the best of luck here Barbra.
Big hugs.
Diane
in reply to: A Cyclist’s Two Days until TT #1179319Glad to hear your surgery went well!
Keep us posted on your recovery !
Diane
in reply to: Endo Appointment – surgery is now on the table #1179367Sue that is great news that your endo is supporting your TT. he sounds like a very compassionate and caring guy. Glad that you found him!
Good luck with your consults at Yale. I hope it goes well
Hugs!
Diane
in reply to: Wish me luck-surgery Friday! #1179080Karen,
Glad Youre home safe and sound! Try not to think too much about the results. Keep yourself busy or just sleep! Lol.
Big hugs !
Diane
in reply to: Diagnosed @ 49 y/o #1179131Boomer,
Love your sense of humor!! If you can be so upbeat and positive during this process you are one step ahead of the game!
Diane
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