[Stymie]

in reply to: Well, here goes! #1173652

AZGravesguy

I wish you the best of luck at your next appt. hope things stay going in the positive direction.

Much love and hugs.

Diane

[Stymie]

in reply to: First symptoms of TED #1181347

Hi gatorgirly!

Thanks for your response! Your comment is why I’m seeking a new dr. ( besides the fact that my eyes are changing) my last dr didn’t take any pictures nor any measurement. So how would he know if my eyes have changed at all from one visit to the next?

Thanks again for your advice and just being here to respond!

Diane

[Stymie]

in reply to: First symptoms of TED #1181355

Hi Shirley,

Thank you for sharing your story. It means so much to hear someone else talk about it and give their own personal perspectives. I would prefer that to reading about it in some medical journal or website. So thank you again!!

I made a dr appt with a new opthamologist. Can’t get in to see him til December. Good news is I think it’s very mild at this point. I just want to get ahead of it if that makes sense. Don’t want to wait until it gets really bad to see a dr.

I notice that one eye does look bigger than the other, but if I ask someone they say no they don’t notice anything. So I guess it’s best to get a professional opinion.

Thanks all!!

Diane

[Stymie]

in reply to: First symptoms of TED #1181353

Barbra thanks for your reply. I was at the opthomologist early in the year and he saw no signs of TED. I hope now when I go back he will say the same thing. I’ve been using tons of creams to reduce that bag under my eye to no avail. I have no discoloration just this weird feeling that my eyebrow is sitting on my eyelid!! Frustrating.

Autogal if you don’t mind me asking, what does it feel like when you have eyelid retraction? I fear that that is what is happening to me in my right eye.
My left eye all I feel is dryness and eye tearing.

Thanks so much for your replies! It helps me I much! Just trying to figure out ha is going on!

Thanks again!

Diane

[Stymie]

in reply to: First symptoms of TED #1181350

Thanks Holly for your reply and information!

I think what im experiencing is either lid retraction in my right eye or swelling in the tissue above the eye. I have had a bad under my right eye since I was in my twenties and over the last couple years it has gotten much bigger. I was just attributing it to old age! lol I was looking at some pictures of TED online and think this is what’s going on. I was just looking for some confirmation of what it feels like.

I went to see an opthomologist last year and he saw no signs of TED, although I think my right eye is progressing. Im not sure If I really liked this guy or not so I may just go see someone else.

THanks so much for your input!! I really appreciate it!

Diane

[Stymie]

in reply to: What could it be??? #1181160

Hi again!

Just so you know most people don’t test positive with the blood test for celiac disease.

Make sure you follow through and insist on having further tests if you are still having stomach issues.

Also you can be gluten sensitive without having celiac disease.
I did not test positive for celiac but now that I’ve removed all gluten from my diet I do feel alot better.

As well dairy can cause a lot of the stomach issues you were talking about. So I would talk to your dr about that as well.

Good luck to you!
Diane

[Stymie]

in reply to: What could it be??? #1181157

Hi Alienware!

Most websites and forums I belong to recommend a gluten free clean diet for anyone with autoimmune thyroid disease.

If you find out that you do have autoimmune thyroid disease you can try doing a gluten free clean eating diet and c if that helps you. It has helped me tremendously especially with Ted.

Good luck to you!!

Diane

[Stymie]

in reply to: Flu Shots? #1181178

Hi sue,

I was thinking about this too.

If autoimmune diseases are triggered by a virus, and vaccines and flu shots essentially introduce a virus into your system, then common sense says people who already have one ( autoimmune disease) should stay away from these shots.

My theory is that you could go your whole life and never be exposed to the virus that will give you lupus, guillen barre, or any one of the diseases. Why risk triggering an autoimmune disease that is laying dormant in your body?

That is just my humble opinion.

Good luck to you sue.

Diane

[Stymie]

in reply to: Salivary gland scarring- Dry mouth 13 yrs after RAI #1181184

Hi miyogirl!

I too had issues with my salivary glands after RAI. I talked with my endo and she says yes it can happen (damage) after RAI. I wish there were more reports of it on the internet and web so that people like you and I could be more informed.

But anyway keep water with you at all times. Sugar free gums and candy and excellent oral hygiene. We are more prone to get tooth decay now.

Hope this helps you.

Diane

[Stymie]

in reply to: Hi Friends….been a while….an update… #1180850

Hi Karen!!

I’m so sorry your eyes are getting worse!!

I love to read just like you and when my eyes hurt I seem to find myself thinking about books on tape? Have u thought about trying those? I wonder how that would be. But I’m sure it would give your eyes a rest.

Hope you get some relief soon!

Diane

[Stymie]

in reply to: Update, another test, numbers good, still on track for remission. #1180639

That is really great news!

Congrats!

Di

[Stymie]

in reply to: Switched meds and feel awful :( #1180725

Heather,

I too get those obsessive thoughts in social situations. I go home and analyze everything that came out of my mouth until I find SOMETHING I did wrong and then get extreme anxiety over it.

I know all of this started after I started taking levo after my Rai. I suffered terribly on that drug and after switching endos I was put on tirosint. No fillers. Which it seems I had a problem with on levo.

I have gotten much better since switching meds, but I am surely not back to myself. I try to explain this to my husband family and friends and they just don’t seem to understand. They think since my numbers are in the normal range that I feel fine. And I don’t. I’ve stopped trying to explain this to the people around me. It’s just too hard for people you love to look at you like you’re crazy.

I hope once you get back on your previous med everything can get back to normal for you.

Keeping you in my prayers.

Diane

[Stymie]

in reply to: My baby girl #1180176

Thank you so much!!

He sent us for blood work and hopefully I will have results by Monday.

Praying for nothing but good news!

Diane

[Stymie]

in reply to: My baby girl #1180174

Hi,

Just wanted to check in and give an update on my daughter.

Her antibody test came back normal. They did a anti thyroglobulin test her result was

<20 range 0-40

Ultrasound showed some vasularity which is consistent with hashimoto disease.

I have made an appt with a peds endo and we are seeing him today.

My main concern is she has a hard time catching her breath when her heart starts racing. Which is not all the time. Just randomly.

I feel maybe I’m being a little over protective, but I just don’t feel I can chance my daughters health and not look into this further. Call me crazy idc.

My next step is a peds cardiologist.

I will keep you all updated. Thanks for all your support.

Diane

[Stymie]

in reply to: Running out of Steam Post TT #1180656

Sue,

I wouldn’t be so hard on yourself. Your body has been through a major upheaval as well as the fact that your body is probably on its way to being hypO.

I took SO many naps when I was hypO.

Give yourself some time to heal and take it easy on yourself. You will get there eventually.

Hugs.

Diane

[Author]

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