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  • steves
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    in reply to: The RAI decision #1185389

    I was diagnosed with Graves in 2006. I had some exophthalmia, but not too bad, so no need for steroids. I had RAI ablation that December. It went smoothly and was painless, but I took awhile to get stabilized on levothyroxine. After stability, the only difficulty was in taking the pill daily, but it is easy to get into a habit. And I echo that small aberrations to your schedule have no noticeable impact.

    I developed TED in 2014, ultimately having surgeries in 2017. The surgeries went rather smoothly. I didn’t need pain meds, was up and about in a day or two, and back to work after four or five days. Eyes are back to normal.

    The scariest part of it is all the unknown. Research it all and educate yourself. It is not a difficult disease to get through, as they now have the ability to successfully treat most of what Graves throws at you.

    steves
    Participant
    Post count: 2
    in reply to: Double Vision #1183820

    Hello Liz1967 — I am new to this forum, and not sure how to participate. I read your post about the different Fresnel lenses, and am curious about your experience. What was it like to use 35 diopter prisms? My doctor stopped measuring me after 30, saying I would be uncomfortable with stick-on prisms any higher. I estimate I would need between 40 and 50 diopters; although perhaps even higher by now. I don’t think I have stabilized yet. Did you try 35 diopters on one lens? Or did you split it with half on each lens? Have you had strabismus surgery? — Thanks, SteveS

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