[stephg]

in reply to: Weight gain from hyper to hypo? #1066179

Thanks guys for all the useful tips! As much as it pains me to say I think the best advice is as Bobbi said, only eat things with nutrional value. Not easy but certainly makes perfect sense. Anyway had RAI today, feeling fine and looking forward to coming out the other side hopefully. The support is great here, I dont think I would have went through with RAI only for the support and advice on this site, you all deserve medals:) Thanks, x

[stephg]

in reply to: Side Effects From my antithyroid medication #1066118

Hey JJB,

Dont know if its any help but could it be the inderal causing it? I had a terrible experience with inderal, I couldnt eat, was nauseus kept having sugar crashes. And then doc changed me to betaloc and straight away I felt the difference. Anyway just a suggestion. I had an awful time of it with antithyroid medication so I feel your pain. I had RAI today so fingers crossed things will change:) Best of luck! x

[stephg]

in reply to: Weight gain from hyper to hypo? #1066175

Thanks for clearing that up Bobbi:) So then basically when I am going from hyper to hypo my body never gets a chance to build up muscle? And muscle burns fat therefore thats why its harder to shift? And then when I get RAI I will be still all over the place for a while Im guessing? The radiologist told me it can take up to nine months (worse case scenario for RAI to do its job!!Whoooa!) I have been told I will have to stay off all meds except my beta blockers and calcium after RAI and that I will probably be hyper then for a while…and then go hypo. Do people normally just stay as they are weightwise or do they automatically put on more weight with going hypo? Sorry there is prob loads of questions loaded in this post! I would just like to avoid having to go out and buy more clothes. Im really not worried at all about getting the RAI itself I dont really have much choice, I have just had such a difficult time of it already with weight I dread the thoughts of a bigger battle!
Any advice on how to avoid more weight or foresight on this would be greatly appreciated:)

Thanks:)

[stephg]

in reply to: Feeling so angry, when will i get answers? #1066647

enough3 wrote: I feel SOOOOOOOOO much better already

Jeez thats great to hear! Very encouraging. It is so mentally (not to mention physically) draining. I think I am just in the height of it all now which I am sure everyone else has gone through as the disease runs its course! Thats like what my endo said to me, she said we will try the medication because you are so young (I guess its always worth a try!) if not we will do RAI. It just feels like its never going to get better. And Im not sure about anyone else but nobody I know has ever even heard of a thyroid….ha ha….ironic when you think about how our thyroid can go out of kilter and you know ALL about it then!!

I felt so upset when I first posted here today but now theres a little (actually no…a BIG) black cloud lifted from me. To know that possibly it was just the thyroid meds that were leaving me so drained:) Thanks guys!!

[stephg]

in reply to: Feeling so angry, when will i get answers? #1066645

Thanks Bobbi-

Its great to hear im not the only one who felt like that! I think the problem was when I was fine for a couple of months on B&R. Well, actually I never had any reactions to ATD’s. That is why the endo wondered was there something else causing me to feel so bad?! She said that if I was going to have a reaction to them it would have happened early on (as in early 2009)The first couple of months on the block and replace I felt great. Really good! but then I guess I can only explain it as ‘hitting a wall’. Extremely fatigued, I need to set like ten alarms to get me up in the morning, and no matter how many hours I have slept I feel unrefreshed. I was (and still am) having lightheaded and dizzy spells, where I literally feel I am going to faint! I guess it is just trial and error with medication and our chosen path as we all react differently. I am probably being really selfish as I have only had this trouble for a year and others have suffered it for years! Sorry guys ” title=”Wink” />

Maybe RAI is my best option, thats what my endo thinks. ATD’s obviously just aint my thing. As the endo said definitive treatment is my best option. Thanks again for the advice Bobbi! I read a post where you said ppl who do well after RAI dont tend to return with their success stories. That makes so much sense and they just put it all behind them after that!

Thanks ” title=”Very Happy” /> x

[stephg]

in reply to: Graves Disease and my future #1067110

Well, best of luck in february:) A rollercoaster indeed!!! Its a feast or famine too skinny or piling on the weight, no apetite of really hungry…

[stephg]

in reply to: Graves Disease and my future #1067108

Hi Kimberly,

Yeah the endo did warn me about that before going ahead with the treatment. I have to get a full blood count the next couple of weeks. I think my therapy is the former one because i am on 40mg of neo-mercazole (methamozole i think it is also known as) and 75mg eltroxin alternating to 100mg every other day!! Although when I first saw the endo she put me on a really high dose of ATDS, then let me go really hypo and introduced me then to eltroxin! God hypo is so difficult, think i lost so much confidence (being tired, put on like 11lbs in about 3 months-shocking for someone just over 5ft tall;)) Thanks for your advice on the health insurance ill definitely start looking. Hopefully my current provider will do abroad for me. That bracelet is a great idea;) I wont be travelling alone ill be with my boyfriend and he certainly knows a lot about it at this stage. Did you have block and replace yourself?

Steph:)

[stephg]

in reply to: Graves Disease and my future #1067106

Hi Bobbi,

Thanks for your reply. I am pleased to say I saw my endo today and to my delight she believes that I will be able to travel by July 10. Because at this stage they will know if I am in remission or not. (I will be taken off meds and see how my body takes it!) Also, I am planning on going to Australia, and she said because it is Australia, I would be ok travelling ther as she can keep in touch with an endo via email etc (and its not the middle of nowhere so to speak;)). I just thought I would post this up because it is so good to see that Graves Disease (bad as it can be) really doesnt stop life from going on as usual…we just have to find different ways around how we live it ” title=”Very Happy” /> And I really have to say I am so lucky I have such and open minded endo who is taking everything into account and not blocking me with a brickwall of her own opinion!!

Q.Just wondering is block and replace therapy common for people with graves as I have not come across it here? I have found it to be fantastic so far as it has made me feel somewhat normal again!!! (Even if it is in its own way false;))

Chow for now,

Steph. x

[stephg]

in reply to: Swine Flu effects on Graves #1069278

Hi Guys-

Thanks so much for such efficient replies. Its the first time in my life ever writing on one of these boards ” title=”Smile” /> But as I was concerned it was my best option. All of your posts were of great use…esp that one from Bobbi! I am on neomercazole(carbimazole) 45mg at the moment which has really helped reduce my hyper symptoms (thank god we live in a day of modern medicine)!! Ok, so I think I know where I stand now which isnt too bad a stance. I have had my antibodies against thyroid tested the last few weeks and its very high. Also, my iron levels were very low so I am taking supplements too. I am hoping with the iron too this will help. My fear was more so the name ‘autoimmune disease’ and the papers are reporting this to be high risk. So as one final question? If my immune system was down, does this only give rise to the fact i will contract it easier or does this mean i would be most likely to have complications if contracted?? I hope this makes sense!!!

And thank you so much guys for replies etc. so good to have other ppl with same thing cos lord friends, family and bf dont have a clue what I do be on about.
Probably sick of listening to my woes and whinges:)

Steph xx

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