[Sneagle02]

in reply to: hello and issues with Tapazole (methamazole)? #1183453

Hello.
I would think you need to see a doctor and get some labs to make sure your white count didn’t drop again. With a persistent fever, you could have a low white count and an infection that is difficult to clear.
On the other hand, I was well controlled on one dose of tapazole and then began to feel hyper and was and had to increase the dose significantly.
Good luck in sorting it out. It’s a pain in the neck (oops, pun not intended, my neck does not literally hurt)

Linda

[Sneagle02]

in reply to: hello and issues with Tapazole (methamazole)? #1183452

Hello.
I would think you need to see a doctor and get some labs to make sure your white count didn’t drop again. With a persistent fever, you could have a low white count and an infection that is difficult to clear.
On the other hand, I was well controlled on one dose of tapazole and then began to feel hyper and was and had to increase the dose significantly.
Good luck in sorting it out. It’s a pain in the neck (oops, pun not intended, my neck does not literally hurt)

Linda

[Sneagle02]

in reply to: Just needed to vent #1183377

I don’t have advice, just commiseration. It sucks to be so tired and apathetic. It can feel too hard to answer an email or get the mail or take out the garbage. I’m over it also. I am feeling a little better right now after being very hyperthyroid again. I am going to do RAI and am hoping its a good decision. I was having trouble getting stabilized on methimazole.
I hope you feel better soon. I start to wonder if maybe I’m just lazy because everything is so hard. But I know it’s the Graves. I wish there was a magic, easy cure.

[Sneagle02]

in reply to: Feeling fairly hopeless #1183288

Thanks to everyone who has replied. The bad news is that going off the methimazole for the uptake study has made me feel much worse. I am jittery and cannot focus for the life of me and all the other fun symptoms. And I think in one week I have lost a ridiculous amount of muscle mass.
The good news is that I can’t wait to get the scan today and restart the methimazole until I am scheduled for the RAI . It’s like the story my grandfather used to tell about the farmer who had no room in his house so the rabbi kept telling him to bring in another animal every week and then when he finally told him to take them out, his house was much bigger! Or something like that.
I am not feeling as down about this right now, maybe because I feel like I am moving towards a more definitive resolution. I refuse to think about the logistics of doing RAI as a single mother by choice with a 9 year old and a dog and a job that involves working with children. It has to work out.
I still am on the fence about telling people about the Graves disease. I know my productivity is down, especially this week but I hesitate to share why. Partly because when I tell myself why, I feel like I am making excuses.
Anyway, the scan is this afternoon and I have my medicine with me to take after and hopefully will know then what kind of precautions I will need to take for home and work and can make further plans.

Linda

[Sneagle02]

in reply to: Feeling fairly hopeless #1183276

Flora:
Thanks for replying. I appreciate the encouragement. It feels lonely and I feel like I should be functioning better despite the Graves. I am pretty hard on myself, I know, but I can’t stop feeling like that. And I’m really not sure if I should tell people or not. If I had something like cancer, it would be more clear to me about disclosing and probably more obvious. I don’t want to complain and I don’t want to make excuses, which is how it feels to me.
This board seems really good, I’ve only been here a short time, but I have to say it is discouraging to have close to 200 people view this post and only 1 reply.
So, thanks for reaching out.
I hope you find your sweet spot soon.

Linda

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