[smnm96]

in reply to: child with Graves’ learning disability article #1064053

thanks Bobbi!!
That is the one!

[smnm96]

in reply to: Any suggestions- Graves’ child behavior #1068043

I just got her numbers back and they are all normal. Her tsh is 2.43. I do not know if her out of control emotions can be explained by the graves or is it something else. Have any of you had normal numbers but been emotionally hyperthyroid?
Thanks

[smnm96]

in reply to: Any suggestions- Graves’ child behavior #1068042

She has an agenda book that the school gives them. She is in the advanced math class and when she settles herself down she is able to do the work. She reads books that her sister in 5th grade reads. They go to a private school and they have a very demanding schedule. She seems to be able to do all the work. She comes home and plays for hours outside. She plays soccer and enjoys piano. She is frustrated from the time she wakes in the morning until she goes to bed. At school she seems to be ok. Her numbers are going to be check today. I will keep you posted.

[smnm96]

in reply to: Any suggestions- Graves’ child behavior #1068037

She is an A student. Even though it is early, her math grades seem to slipping. She is getting B and 1 C on her homework. Part of the reason why her grades are low are because she forgets to do some of the work and skips problems. She has never done this before. She seems to be doing ok in her other subjects. She has no behavioral issues at school. Her doc told me this is normal, kids are able to control their emotions in a regimented setting. We will see what her labs are like. If her numbers are in range, I am not sure what to do next. I am a physician and spoke with a psychiatrist I work with . I was asking him about child psychologists. He seems to think she needs to see a child psychiatrist due to the Graves’. I do not want to put her on any more meds which I know is what a psychiatrist will want to do! I just want to find the best way to help her and her siblings whom are all affected by her behavior.

[smnm96]

in reply to: Just a small frustration #1068369

Hi,
I can empathize completely!! I am a physician and my daughter was diagnosed with Graves in Oct at 8 years old. She is on Tapazole so twice she has gotten fevers and I made it a point to check her wbc’s (which were low and neede to be followed closely)! I also noticed that her thyroid was getting larger and she had several firm lymph nodes in her posterior cervical area of her neck. As a physician, I know all the possibilities. Her endo (who is a first year fellow) told me if her thyroid kept getting larger to have an u/s. I did and they found 2 tiny nodules and bilaterally enlarged lymph nodes. At this point I ordered lab work at my lab to r/o bad things that enlarged lymph nodes can be associated with. Well, her phosphporous, ldh, esr and cbc were all abnormal. I waited 6 weeks and did follow up labs to see if these abnormalities resolved. Most did but her blood sugar was 57! This was after she just ate a bagel with cream cheese,fruit cup and big jug of chocolate milk. I called the endo fellow several times and took her 3 days to get back to me. She said she was concerned about the possibility of type I dm. She made a visit with me in 4 weeks. Being a physician I ordered several autoimmine panels to rule out type I DM. Well, when my husband and I got to the appointment I brought all the lab work. She left the room and got the attending MD, who then proceeded to lecture me about why all this lab work was being done! Mind you I am a physician who had an 8 y.o with many abnormal labs! They took me by surprise and I did not know how to respond. She is supposed to have f/u in oct. This is the best hospital in the area for Graves. Now my daughter is emotionally out of control, but I am afraid to do any more labs!!! I do not feel comfortable going back!
Nicole

[smnm96]

in reply to: My 8yr old DD just diagnosed, by smnm96 #1068408

Thank you all so much for your prayers. I love her to death and want to make sure I am doing all I can to help her become the best she can be. I have 2 other children ages 10 and 5. This makes it very difficult. They get jealous because of her "special" treatment. It is tough to make them understand that she has a medical illness that causes this. Her physicans have not been very helpful. Their thought is that if the numbers are ok, her symptoms should be too!!! They do not have many answers on what I can do to help her.
Thanks again for your support,
Nicoe

[smnm96]

in reply to: My 11 year old daughter just diagnosed! #1068642

Hi,
This is my first time doing this so I am not sure if I am doing this properly. My 8 year old daughter was diagnosed with Graves in Oct of this year. She has been on Tapazole since then. She did go very hypo but with med adjustments in July her numbers were ok. She is only on 5 mg daily. Her behavior is so erratic. She has constant mood swings, yelling outbursts, constantly yelling out the same phrase"My name is Alex", always complains how hot she is and has a big appetite. Even though her tsh is in range her behaviors are still not in good control. I am having a hard time to know if this is from the Graves or if it is just due to poor behavior. I do not know how to discipline her. I try to talk to her but she starts screaming and covering her ears. Does anyoneone know any specialists that could help me out. Her behavior is disruptive to the entire family and I want to help her in the best way possible. Help please!
Nicole

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