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Viewing 15 posts - 1,096 through 1,110 (of 1,548 total)
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  • Ski
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    Post count: 1569
    in reply to: Chest pains #1072095

    Jake has experienced a condition called costochondritis that causes pain similar to what you’re describing. It has to do with inflammation of the cartilage that connects the breastbone to the sternum, and is deemed harmless with no cause that’s understood. Still, every instance of chest pain is something to check, so it’s wise to talk with the doctors even though you’ve been fully examined in the past. Try to find out whether there is some element missing in your symptoms that, if added, WOULD cause them to have further concern. Then you can look for that specific additional symptom, and only call when/if it is present.

    Ski
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    Post count: 1569

    It’s a possibility, and that’s the easiest thing to check. Just get labs done and find out for sure. If it’s not, keep asking questions of the doctor and get to the bottom of it ~ too often after we have Graves’, our doctors check thyroid levels, announce, "normal," go home, you’re fine! And we forget to turn it back on them ~ I’m NOT fine. Help me find out why. Good luck, let us know how things turn out!

    Ski
    Participant
    Post count: 1569

    Stress can definitely play a part as at least one trigger involved in getting Graves’ Disease. Unfortunately, while we are hyperthyroid, we do not have time to sit back and "work it out," because hyperthyroidism is extremely dangerous. We must at least get started on ATDs in order to stop the onslaught of thyroid hormone, then other things we do (like therapy) may work in our favor and assist our body in achieving remission. We can’t just ignore it and try to "man up" and get better on our own. We risk thyroid storm or heart arrhythmias, either one of which could kill us rapidly. In addition, high thyroid hormone levels left unchecked can damage every single body system. There’s no way any of us have the reasoning power necessary to work through our own emotional issues while we are hyperthyroid. If you’ve felt it, you understand. You must calm the body, correct the imbalance, and then the body can begin to heal. Once levels have been stabilized for some period of time, THEN we can begin to look into our own emotional issues and correct them, because only then are we well enough to try.

    Recent research has uncovered one genetic defect that we all share with other autoimmune patients ~ not everyone with the defect has an autoimmune disease, but everyone with an autoimmune disease has the defect. This is at least the beginning of an understanding into the root causes, and also a confirmation that there is a physical component involved within each of us.

    Ski
    Participant
    Post count: 1569
    in reply to: RAI #1072248

    I just bought them from my local Walgreens, but it was admittedly many years ago. My doctor found out I was paying a $10 deductible each month ~ and I was also complaining about my insurance company’s rules that I could never be prescribed more than a 30-day supply of anything at one time ~ and he looked up "rack rate" for 100 pills. He told me to visit my pharmacy with a prescription for 100 pills, tell them I am buying them WITHOUT insurance, and they would charge me regular rate (and not restrict me to 30 at a time). I went and did just that, and paid somewhere around $25 for all 100 pills. Personally, I was sick about the fact that my insurance company was not just asking me to "pitch in" when I was buying them the other way, they were MAKING MONEY on me! I’m sure the prices have gone up since, but you still may save money by doing the same thing. I tried to do a little websurfing to find the prices and had a hard time finding the current prices, but I did locate one page that definitely indicated you’d spend less than $75 on 100 pills buying them independently. Heck, go to your local Costco, they’re probably even cheaper, and they are not allowed to restrict access for lack of a membership.

    Ski
    Participant
    Post count: 1569

    Oh yes, we’ve heard of this ~ there are lots of ways to accomplish decompression, and I believe every doctor has their preferred techniques, as well as customizing the procedure to your specific issues. It’s complicated for each patient, I know that much. I’m sure it helps to have a physical picture of what they’ll be doing. I do know that some other issues may need resolving afterward, and I’m sure you’ve heard that as well. Getting the eyes JUST right can involve tiny adjustments after you’ve healed from the decompression, but never fear, everything is solvable. Wishing you all the best!

    Ski
    Participant
    Post count: 1569

    That’s a good question ~ genetics play a definite role. As far as I know, Graves’ doesn’t cause early onset of menopause, though imbalanced levels can wreak havoc with the schedule (I’m sure you know ~ hyper = late/light periods, hypo = early/heavy periods). If it doesn’t fall consistently on one side (early or late), then thyroid levels probably have nothing to do with it. I found out that menopause is actually defined as the time AFTER you’ve had no period for at least a year (and the "usual" range for that is between 45 and 55). Everything before that is peri-menopause, and it can go on for years before your cycle stops completely, so there’s a chance that’s just beginning for you.

    I do think stress can affect our periods, once we get into that peri-menopause state. I’ve had a few "skips" when I was just worried about getting it (travelling or something like that), so it’s possible the stress of your procedure prompted your latest episode. Just a completely off-the-wall guess. <img decoding=” title=”Very Happy” />

    Ski
    Participant
    Post count: 1569
    in reply to: RAI #1072246

    Synthroid is CHEAP, the generics even cheaper. I used to buy 100 Synthroid pills, without benefit of insurance, for less than $30. That’s more than 3 months’ worth.

    Ski
    Participant
    Post count: 1569

    Both eyes, wow! I’m sure many reassuring responses will be forthcoming. <img decoding=” title=”Very Happy” /> You must’ve hit the cold phase, or they probably wouldn’t be doing the surgery ~ I guess you weren’t one of those who saw significant improvement prior to the cold phase. Sorry ’bout that. <img decoding=” title=”Wink” /> I’m awfully glad you’re having the decompressions done though, I’m sure you’ll be happier afterward (after the recovery)!

    I have NEVER heard that the thyroid rejuvenates after RAI (requiring surgery), by the way, and I’ve been hanging out at this Board for more than 10 years. There’s a slight chance that the RAI dose wouldn’t be large enough to destroy the whole thyroid, and in that case, if hyperthyroidism returns, the patient would have a choice of another RAI, or surgery. I have never heard that surgery is "routine" following RAI, except for thyroid cancer patients. Oh, except I think they do it in reverse (thyroid surgery first, RAI following, to cover any thyroid tissue that may remain).

    My thyroid is LONG gone since RAI, no hint of its return.

    Best of luck on your surgery, we’ll be thinking of you!!

    Ski
    Participant
    Post count: 1569

    Thanks for the kind words, lakeview. <img decoding=” title=”Very Happy” />

    I didn’t have surgery because my eyes returned almost completely to normal. Granted, my eyes were never really that bad ~ there was a period of time when they bulged a little, but I never had significant double vision or difficulty moving my eyes or pain behind my eyes. Here’s the weird part ~ I DO still get puffiness sometimes, even though my TED is completely resolved. That’s what makes me think it’s related to some other element of Graves’, and not even thyroid imbalance, because that’s over with (for me) too!

    I found that raising the head of our bed helped IMMENSELY with the puffiness, you may want to experiment with that. It’s a little weird, and some beds might not take well to it (we have a dresser at the foot of the bed so the mattress won’t slide right off), but it has been so worth it. It just helps the fluid NOT to collect around the eyes during the night, which means you start the day ahead of the "puffy" curve. Mine usually gets better during the day, so starting from a better point means it’s better all around. Piles of pillows are nice (I actually do that TOO, for the arthritis in my lower back), but you can fall off pillows during the night, and the bend also creates stress points that can be uncomfortable, so if the bed itself is raised up at the head, you can fall off all the pillows, lay flat on your mattress, and still get the benefits of having your head raised while you sleep. My husband put "chunks" of 4x4s under the frame at the head of the bed, if that helps. (By the way, this also solved his middle-of-the-night heartburn!)

    It’s really common to have a little blurry vision right after you put the drops in, don’t worry about that. It shouldn’t last long. Just hang in there. <img decoding=” title=”Very Happy” /> Some drops have different "weights," if you will ~ thin, thicker, thickest, like that ~ so you may want to take a look at the type you bought and see if they have a "thinner" version that might not create the blurriness. The ones that come in individual doses are probably the very thinnest. Keep in mind also, they can get expensive (especially since we use them so often), but if you can get the eye doctor to write you a prescription, you may be able to buy them for your co-pay, instead of full price.

    Ski
    Participant
    Post count: 1569

    I understand how you feel with your looks changing ~ my first symptom was puffiness around my eyes, and it literally appeared between bedtime and waking up. I must’ve been two hours late that day, running around with cold compresses and trying to figure out how I could "fix it." For me, I don’t think the puffiness was related to TED.

    Puffiness actually may be a symptom of thyroid imbalance instead. If it is TED, some people do get puffiness rather than eyes bulging, because the fluid can be pushed from the cavity behind the eyes into the tissue surrounding the eyes instead. Lovely thought, I know. :roll:

    The doctor should be able to give you some idea of what’s going on with you when you have your appointment. If you feel there’s any use in doing so, call them up and tell them your most recent symptoms, then ask to be put on a cancellation list, so you may be able to be seen sooner. (Don’t give up that solid appointment, though.)

    Now, blurry eyes may be a result of dryness, so get some artificial tears (preservative-free, NOT get-the-red-out drops), and use them liberally. Corneal dryness can cause damage that cannot be corrected. Without preservatives, you can use the artificial tears as much as you like. When you’re working on the computer, or doing something else that is sufficiently irritating to the eyes, using them every 15 minutes is NOT too much.

    If you have TED, "treatments" include many things. Most patients just have "wait and see" treatment until their eyes settle down, then you can talk about corrective surgery. Many never need corrective surgery (I didn’t). If your optic nerve is threatened (the pressure can compress it and you can lose sight ~ VERY RARE, DON’T PANIC!), then steroids and/or directed radiation (literally, a beam pointed at your eye socket) are treatment options, but they are reserved for only the patients in the worst condition, because obviously both steroids and directed radiation carry some risk.

    I completely understand the feeling of "looking different," that is extremely difficult to deal with. You may want to look into using anti-depressants or even just having "talk therapy," because there is SO much wrapped up in how we appear to others. The emotional effects of TED are what most patients will declare as the most frustrating thing, the thing that puts them into deep depressions, so doing what you can to level that emotional field will likely help you through it.

    Ski
    Participant
    Post count: 1569

    Well, perhaps he’s thinking about going into RAI from a stable point, rather than while you’re hyper ~ it is possible that stopping the ATDs won’t make much difference, depending on the period of time your doctor recommends. Yet another question for the doctor. <img decoding=” title=”Very Happy” /> Remember to write these down, I know I tend to forget until JUST as my hand hits the car door handle….

    Still, three more months to stabilize is a while. If you really feel as if you’ve made up your mind completely on RAI, that’s ANOTHER good question for the doctor ~ why would he keep you from doing it now?

    Ski
    Participant
    Post count: 1569
    in reply to: sunshine and TED #1072168

    I don’t think exposure to the sun can make the TED symptoms accelerate, but it’s definitely an irritant, as is the wind outdoors and (right now) the pollen. You may want to get those wraparound sunglasses to protect your eyes more when you’re out there. You shouldn’t have to stay in, though.

    Ski
    Participant
    Post count: 1569

    It’s true that PTU (or methimazole) is capable of causing liver damage in anyone who takes it, so it’s a good thing your doctor is having labs done. Since the value seems out of range, I would have a discussion with the doctor about it. I’m not sure if "slightly" out of range is okay, but wildly out of range is not. That’s something for the doctor to evaluate. Presumably, the doctor HAS looked at those test results. From what I understand, if the levels remain elevated, you need to at least consider that, and maybe pursue another option. Still, there is a chance the levels will come down as your dose comes down. If you are unable to lower your dose without having your thyroid hormone levels spike again, you should definitely discuss that with the doctor soon.

    It isn’t guaranteed to cause liver damage, by the way. It’s a possibility. I’m not sure anyone knows why one person would be more likely than another to have it happen. The liver does build up "junk" over time, so older people may have a slightly higher possibility of having difficulties, since they’re more likely to have built up more "junk."

    Ski
    Participant
    Post count: 1569

    I think the amount of time you need to be off ATDs depends on a few things ~ which one you’re taking, how much you typically take, and finally, your doctor’s opinion. This is a good discussion to have with the doctor NOW. There shouldn’t be too much time that you feel awful, because the ATDs have a little bit of a residual effect anyway (from what I understand), but you’ll also know that you’re headed for better days, so that might help. Besides that, you’ll know what to expect, and why it’s happening, which has to be an improvement over the first time. <img decoding=” title=”Very Happy” />

    I believe that, after the first few days, you would be clear to go back on the ATDs until the RAI accomplishes the real destruction (that can take up to six weeks), so you could use ATDs to keep yourself balanced in the interim. That’s another part of the discussion you need to have with your doctor, ahead of time. Everything goes better when you’re fully informed up front.

    Ski
    Participant
    Post count: 1569

    I have a capture program at work that lets me specify exact pixel sizes, so I used that function (didn’t have anything as advanced at home, just at work). Looks like you found a way though, nice little photo you’ve got there! <img decoding=” title=”Very Happy” />

Viewing 15 posts - 1,096 through 1,110 (of 1,548 total)