[sickofgraves]

in reply to: RAI or NO…What is Your Opinion!!…HELP! #1070814

Thanks so much for all the responses. I am, at least today, leaning towards going back on Tapozole and following a more thyroid specific diet. In all the forums and websites and letters that I have researched and/or received, RAI really got a bad rap. And, many of the correspondances I received were from experts in the field. I was surprised…and really hoping that RAI would be my ‘Knight in shining armour’, that would take me back to a healthy place. But, I think I am going to go with thyroid meds for awhile and my beta blockers and try some natural approaches like accupuncture and stress release, like yoga and meditation. At least for now.

Meanwhile, tomorrow is my scan and the results of that may change my mind…but probably not. I have spent this month waiting for a therapy and I guess in the wait, found out something that I wasn’t expecting. I wish there was an Endo within 100 miles of me. I live in Northern California…200 miles north of San Francisco. If any of you out there know of a good Endo, please pass it along.

I’ll keep checking and posting. Thanks again!

[sickofgraves]

in reply to: RAI or NO…What is Your Opinion!!…HELP! #1070810

Thanks Mamabear. I am a grandma. Two grandsons and I am majorly hands on. My 5 year old grandson gives me a pillow to sit on so I can build a train track with him on the floor…really dear. I have a 30 year old and a 26 year old.

I do exercise everyday in the form of walking. 30-45 minutes on land or a treadmill. I wish I had a doctor. I can’t believe that there is not one within 100 miles of me that specializes in my problem. Bites. I’ll just keep plugging along with this forum and I do get my uptake scan Thursday, so we’ll see what those results look like. What have you read about long term Graves and osteo…? It’s the latest concern on my list. Sounds like you have your hands full. Thanks for taking the time out to help me.

Oh ya, here’s a question…How do you know day to day or week to week how much iodine to allow in your diet if you don’t really know if it’s in remission or not?

[sickofgraves]

in reply to: RAI or NO…What is Your Opinion!!…HELP! #1070808

If there is any humor in this, it’s that every post where RAI sounds promising I get a surge of YAY, I’ll Do It! And, every time I see a post or article against it I automatically think…No Way!

[sickofgraves]

in reply to: RAI or NO…What is Your Opinion!!…HELP! #1070807

Thank for that reply. One of the things that I have heard a lot is that RAI is not a one shot deal and that you have incredible ups and downs for months after you get it. I wish there was a magic ball out there. I don’t want osteo if I don’t get RAI and I don’t want RAI more than once…I think. Were you on Beta blockers? Some folks have recommended to me to take the meds and get a script for a low dose beta blocker that you take as needed. All these things..Yikes

[sickofgraves]

in reply to: RAI or NO…What is Your Opinion!!…HELP! #1070805

Thanks Emily. I am glad to find all this support. I am just a little worried about my future with GD and whether the RAI will give me a better chance of ‘quality of life’ or not. Lately I am thinking not, by what so many folks have posted on this website and others. I just don’t know enough about either decision and there is way too much info. Sometimes the internet can be just too much information.

When did your soreness start? Do you have the sore stiff feet when you get out of bed in the morning? XO

[sickofgraves]

in reply to: RAI or NO…What is Your Opinion!!…HELP! #1070803

Wow, Thanks so much for all! I don’t know why, but I had never heard of PTU before this forum. Seems strange. I have heard of Methamozole and I took Tapozole. I am now more and more convinced to NOT do RAI. I am on beta blockers now that mask my symptoms, so it’s easier to be so positive.

One thing that has happened since I became hyper again is this strange muscle and joint soreness, especially when I have been sitting for awhile and also when I get up in the morning. It’s hard to get up from the floor. Once I get up and move around I feel fine. I am a very active 52 year old and this makes me feel 100. Does anyone else have that symptom?

What is a drag for me is that I live so rurally that there is not an internal medicine doctor to be found. My original one only does arthritis now and his partner passed away earlier this year. My family practitioner and my Gyno have been my only sounding board. Now I have all you and that’s a relief.

Anymore info would be appreciated…especially on this PTU and soreness. Thanks!

[sickofgraves]

in reply to: radioactive iodine treatment #1070971

So very interseting reading this forum. I’m 52 and am hyperthyroid. Diagnosed with GD when I was 40 and did 2 years of Tapozole, then went normal for a few years, then went slightly hypo and took a small dose of synthetic thyroid for 2 years and now I am back to hyper. My first inclination is to say, ‘bring it on’ to RAI. I am really sick of my symptoms and am on a beta blocker to help mask my symptoms…which it does to an extent. In my small town, the wheels turn slow and I am waiting for a scan next week and then a consultation and in the meantime I have several friends and family really trying to talk me out of RAI. Words like cancer, obesity, heart problems, etc. come up and I am being encouraged to try other therapies…many of them natural and dietary. However, I am somewhat unrelable when it comes to keeping a perfect diet and am confused, Should I get RAI or shouldn’t I? I just don’t want to do his anymore and popular theory states that hypo is a lot easier to treat and maintain. I have to admit I’ll miss eating everything that I want to and not ever gaining weight. I NEED PEP TALKS from both sides. Thanks!

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