[sholt54]

in reply to: Graves disease and shoulder adhesions/capsulitis #1177400

Thank you for your responses back. It is really appreciated. I am diligently doing my post op PT exercises at home and at my therapy appt’s. I don’t want the adhesions that were delt with in surgery to raise their ugly heads again. With an autoimmune dx that has no cure, it makes me wonder if it would happen again or was it just a random adhesion problem that can be common with thyroid disorders and once taken care of its a done deal.??

I was surprized to see that endometriosis is also an autoimmune disorder? I have never heard that remark.
I never knew I had endometriosis until December of 2011 when I went to the ER with what I thought was an appendicitis attack and lo and behold after several tests was scheduled for surgery. The surgeon had to remove part of my colon as well as my appendix due to a scarring down by endometriosis. Then this last week, adhesions of my shoulder were discovered and removed.
Wonder if there is something else I could be pro active about to stave off these responses that are occurring in my body. My TSI remains high (400-600) as always. Never responded to steroids and insurance wouldn’t approve of any more Retuxin infusion therapy after my first infusion because it is not “indicated” in the package insert for TSI thyroid issues.
Anyone else prescribed Plaquenil to try and stem TSI levels? My immunologist had me try it but the loose stools were not tolerable.

The whole OD experience was something I felt was finally behind me…
I am so thankful that GDATF has this site. I need to follow the advice I gave my daughters as they were growing up…keep on keepin on and this too shall pass:)

[sholt54]

in reply to: Graves disease and shoulder adhesions/capsulitis #1177397

Should have signed off as Sally McGOO!! Lost my humor guys.

[sholt54]

in reply to: Orbital Decompression DONE! #1071438

I HAD MY FIRST 3 WALL DECOMPRESSION WITH POSTERIOR ORBIT FAT REMOVAL MARCH 23–OFF TWO WEEKS FROM WORK (MRI TECHNOLOGIST AT BUSY OP CANCER CENTER OWNED BY THE HOSPITAL I WORK FOR). HAD DIPLOPIA OF THAT EYE SO COVERED IT AND USED OTHER EYE WITH A CONTACT AND READING GLASSES. ON MAY 7TH I HAD SAME DECOMPRESSION SURG ON OPPOSITE EYE AND NOW EACH HAS DOUBLE VISION UNLESS ONE EYE IS COVERED (AS I WAS TOLD TO EXPECT UNTIL BILATERAL MUSCLE SURGERY CAN TAKE PLACE)–BUT MUST WAIT MINIMUM 6 WEEKS POST OP DECOMPRESSIONS TO ALLOW ADEQUATE HEALING.
MY TRIFOCALS ARE NOT CUTTING IT BECAUSE MY EYES SIT DIFFERENT NOW AND AS I WRITE THIS MY FACE IS 4 INCHES FROM THE SCREEN–ANY SUGGESTIONS ON COPING WITH THIS IN THE MEANTIME??? WHEN I ASKED THE SURGEON’S OFFICE ALL THEY COULD SAY IS THIS IS THE FRUSTRATING STAGE AND IF MY OPTHALMOLOGIST HAD ANY SUGGESTIONS LET THEM KNOW.
PT. EDUCATION AS TO COPING MECHANISMS ETC. IS SO IMPT…ANY ADVISE.
THANKS! JUST CALL ME SALLY "MCGOO"

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