This is the first time I have ever talked to anyone other than family or doctors about my graves disease. I also have the graves opthalmapathy and have been affected for the past five years. I have had orbital decompression both eyes, seven muscle surgeries, thyroidectomy and RAI. I have been on prednisone most of this time and had to endure not only the horrible changes in my looks from the graves but also side effects from the medication. No one really understands unless they have been there just how tramatic this disease is. I have had some wonderfull doctors but I am really getting tired of all of this. I hear patients talk about going into remission.. I must be one of the unlucky ones. I keep telling myself “this too shall pass” and I am still waiting.
