[Shaunak]

in reply to: thyroidectomy is my only option for another baby? #1181607

Just an update on what is going on. I saw the fertility Dr. last week. He stated because I was sub-clinical hyperthyroid he would have no problem proceeding with the IVF as long as I was closely monitored. His feeling is that the studies that showed a higher miscarriage rate were done when the thyroid was “out of control” and there are many studies that show that the rate of miscarriage is not higher in a sub-clinical state. If I ended up having a miscarriage he would blame my older eggs more than my thyroid. He wanted to run some blood work before we decided to go any further and my TSH came back at .363! (it was .03 before). So all my T3/FT4/TSH levels are within normal limits. This is exactly what happened right before my first pregnancy and I was able to carry her without medication.
I called the endocrinologist and asked about the new TSH level and she said it could be because a different lab that did the test (which I don’t buy, it is too much of a difference) or the PTU could have pushed my body into remission. She agreed to go ahead with the IVF and closely monitor until the 2nd trimester when I can start the methimazole if it is necessary.
We will run a full thyroid panel right before implantation to get a baseline and then monitor bloods as often as necessary. I understand there are risks involved and if this takes several tries it could get worse. But for now, things are as good as they are going to get so we are proceeding with the IVF. Implantation should happen in early December. I appreciate any kind words or support. This was not a decision made lightly.

[Shaunak]

in reply to: thyroidectomy is my only option for another baby? #1181603

Thank you everyone for the kind words and information. I have done a lot of reading over the weekend and I have many questions for the specialists. The internet can be an informative and scary thing so I am trying not to read into anything until I speak to my doctors.
I will give an update after I see the fertility dr tomorrow.

[Shaunak]

in reply to: thyroidectomy is my only option for another baby? #1181596

In August my liver enzymes were the low end of normal around 15 and 16 (before atd’s). My 6 week bloodtest (post starting atd) showed 1 enzyme elevated (33 and 75). They retested again last week just to make sure it wasn’t a fluke and both enzymes were elevated (44 and 88).

I have an appointment with the fertility specialist on Monday to get their opinion and I am going to see another endo for a second opinion before I make any decisions.

And thank you for the info. It was very helpful to be able to read through the guidelines during pregnancy. I hope more people give insight. It is helpful to hear others experiences.

[Shaunak]

in reply to: Biopsy this Monday. Completely overwhelmed…. #1180753

Thank you for the kind words. It was kind of a scary day. The dr finally called after 5pm. She had never heard of this side effect to the medication. She told me to stop the meds for a few days and start again on Friday. If this happens again we may need to try another approach.

[Shaunak]

in reply to: Biopsy this Monday. Completely overwhelmed…. #1180750

So I got the results back yesterday and all 3 nodules were benign. Which is good news. But I started on the PTU yesterday which I am less than thrilled about. I just hate taking medication in general.
I started the medication last night (50mg 2x day) and this morning I had an episode with my vision. I had a crescent shaped “floater” in the center of my vision that lasted about an hour. It gradually grew larger into my peripheral vision then disappeared. I’ve had a headache ever since the incident. I put a call into my Dr. but have not heard back yet. I am assuming its not a big deal or they would have gotten back to me by now.

[Shaunak]

in reply to: Biopsy this Monday. Completely overwhelmed…. #1180748

I was under the impression I did have Graves because the TSI level came back positive. Is there a chance that it is not Graves but the nodules overproducing?
I had the biopsy today and the Dr saw 3 suspicious nodules that she took samples from (that was 11 needles in the neck…ouch!!!) She kept saying things to the technician like “this thyroid is a mess” and its “very irregular”. There were many nodules but she took samples from the three largest. Apparently the biggest is 2.1 cm and that is huge. I wont get the results back until 9/17 because they said it will take 2 weeks and the Dr will be out of town until the 17th. On the plus side she said I can hold off on any meds until then because my levels weren’t terrible. If I end up needing surgery I don’t want to take meds that I don’t need.

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